By Jennifer Rogers
12 Jan

My Regional Conference Experience

Friday, January 12, 2018

I recently discovered the Adult Congenital Heart Association, and I am so thankful that I did. As a young adult and college student living with CHD, sometimes there is a great amount of uncertainty that can come with it. I happened to be learn about ACHA’s Memphis Regional Conference this past October, and it struck my interest.

I had never heard of such an organization, and was eager to find out more about the world I am entering. I attended the conference and was able to connect with people who have similar heart defects as me, which was pretty neat. I learned about how important it is for me to continue to take care of my health, especially my heart health, even though I am no longer a child living with a defect.

I also got to learn about some other interesting topics, such as pregnancy and CHD, the toll CHD takes on a person’s mental health, and the many different kinds of heart valves that are used in surgeries. These were all things I had heard of before, but I was never able to fully understand the information. Being at the conference and listening to what everyone had to say helped me better understand what it’s like being an adult with CHD.

I am now empowered with the tools I need to make informed decisions about my health and I am ready to advocate for my personal health. I also know how important it is to be in the care of an adult congenital heart disease doctor and to stay in care. I really feel that people living with CHD, especially adults, should make it a point to attend an ACHA Regional Conference if one is in their city or area. It is a wonderful opportunity to listen and learn from the top experts in ACHD, as well as meet others with CHD and have a chance to form a network of support.


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