By Kim Edgren
21 Nov

Defining True Support

Tuesday, November 21, 2017

It is that time of year that we reflect on what we are thankful for. This year, as I enjoy the calm of heart stability, it is easy to take that for granted. It is during this calm, however, that I should be the most thankful for that stability.

I would not be here today without the dedication of a team of medical professionals who have cared for me over the years. I would not be who I am without my family and friends sharing this journey and supporting me. I am ever grateful for both.

I am also grateful for ACHA. It is easy to look to ACHA when heart questions arise or fears about our future heart health creep in. But, they are there when we get to enjoy the moments of peace when our hearts behave, when we conquer that fear, and when we let ourselves forget, even for a moment, that we are part of the 1 in 100 club.

That is because for close to 20 years they have dedicated resources, energy and knowledge to us—the adult CHD patient. From their early start at a kitchen table and online discussion board, connecting adults with CHD for the first time, to today and their informative website, multitude of programs and National Conferences, ACHA has made providing connections and resources for our community a priority. Whether we struggle or thrive or are happily healthy, this organization has our back.

So, thank you, ACHA, for bringing ACHD Accreditation to reality, helping to advance and standardize care for our community; for the Heart to Heart Ambassador program that provides much needed support to patients and families; for the ACHA website and webinars that hold a wealth of information on our conditions and treatment options; and for the many other programs that I have benefited from on my journey.

Finally, the people of ACHAI am most thankful for them. From the staff who always works hard for our cause, the Medical Advisory Board with their input and knowledge, the Board of Directors for their vision and dedication and of course, the volunteers who give up their time to support, raise money, raise their voice to make us all more visible. Knowing you are there when I may need you at a time of crisis, being there as a community in times of health, and continuing the journey for others in the future is what true support is. And I am forever grateful.

Happy Thanksgiving!

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The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

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