News
ACHA Board Member Michael Pernick Discusses the Threat of the American Health Care Act to People With Preexisting Conditions at Washington, D.C. Press Conference
Adult Congenital Heart Association Board Member Michael Pernick today joined Senator Dick Durbin (D-IL), Senator Angus King (I-ME) and Senator Brian Schatz (D-HI) to discuss the risks that the American Health Care Act poses to people with pre-existing conditions. You can view the video here, and Michael’s full comments are below.
- My name is Michael Pernick. I’m from Long Island. I was born with a congenital heart defect called Tetralogy of Fallot—you may have heard of it because it is the same heart defect as Jimmy Kimmel’s son, Billy.
Urge Your Members of Congress to Sign the Durbin-Grassley Fiscal 2018 CHD Appropriations Letter
Senate Sign-On Deadline: May 12, 2017
As Congress begins consideration of federal spending bills for Fiscal Year 2018, ACHA asks that you act today to urge your two Senators to sign the Durbin-Grassley Fiscal 2018 Appropriations Letter in support of funding for the CDC program to address the lifelong needs of Americans with congenital heart defects (CHDs). Members of Congress send letters outlining their funding priorities for the next year, and we want as many people to sign onto the letter as possible! The Durbin-Grassley letter requests robust federal support for CHD-related public health research and surveillance initiatives at the Centers for Disease Control and Prevention’s (CDC) National Center on Birth Defects and Developmental Disabilities (NCBDDD). Federal support is necessary to continue and expand upon these efforts to improve health outcomes and reduce medical costs!
Introducing Mark Roeder, New President and CEO
On behalf of our staff and Board of Directors, we are proud to announce the hiring of our new President and CEO, Mark Roeder. He joins ACHA with an impressive 30-year career track record in nonprofit management for large, national health organizations as well as high-level corporate marketing and public relations.
Every Adult with CHD Was Once a Child with CHD...
Philadelphia, PA (February 1, 2017) – The Adult Congenital Heart Association (ACHA) announced today the launch of their Heart Month campaign – Every adult with CHD was once a child with CHD - this February is focusing on the importance of raising critical awareness of congenital heart disease (CHD) and lifelong care from childhood to adulthood.
Advocacy Alert: Notice About Legislative Changes
As the dust settles on last week’s election, many people have been wondering what challenges and opportunities the adult congenital heart disease (ACHD) community will exist with the new Trump administration and new Congress next year.
Legislative Action Alert: Contact Your Members of Congress Today
On Thursday, Sept. 8, 2016, the House Energy & Commerce Committee is holding a hearing on the Congenital Heart Futures Re-authorization Act (CHFRA). As you know, the Adult Congenital Heart Association (ACHA) has been working hard since this bill’s introduction last fall to support its passage. This hearing is an important step towards enactment.
This ACHA-endorsed legislation reauthorizes the Congenital Heart Futures Act, enacted in 2010, that expanded the infrastructure to track congenital heart disease (CHD) at the Centers for Disease Control and Prevention (CDC) and increased research on CHD at the National Institutes of Health (NIH).
Closing the Care Gap for Patients With Adult Congenital Heart Disease
The Adult Congenital Heart Association (ACHA) announced today the launch of their ACHA ACHD Accreditation Program. This is a significant milestone as this program establishes a concrete set of criteria that strives to provide high quality care for adult congenital heart disease (ACHD) patients.
Call for Abstracts – ACHA 8th National Conference
October 7-8, 2016, Doubletree Universal Studios Orlando
Submission Deadline: Now Closed
Abstracts are being accepted for the Research Symposium at ACHA’s 8th National conference. One moderated poster session will take place on Friday, October 7, 2016 from 4:30 p.m. – 6:00 p.m., highlighting 16-20 abstracts. Presenters are asked to discuss their work for five minutes, plus five minutes of time for directed questions and answers. Three abstracts will be chosen to be presented orally at the podium on Saturday morning, October 8, 2016. Podium presenters will receive a cash reward and a plaque.
Action Alert: Ask Members of Congress to Support CHD Federal Funding
Contact your members of Congress today: Ask them to support federal funding for CHD activities!
As you know, ACHA’s advocacy work continues throughout the year beyond our CHD advocacy day in February. As one example, we are currently working to encourage Members of Congress to co-sign a letter supporting federal funding for the CHD activities at the Centers for Disease Control and Prevention (CDC).