Thank you for supporting ACHA — we want to get a better understanding of what you need to improve and extend your lives through education, advocacy, and the promotion of research. Our goal is to find out what you want from ACHA so that we can bring the most value to you now and in the future. For example, let us know which programs you like, what may not be working for you and what more we could do.
Join Advocates on the Hill Lobbying to Raise Awareness of Congenital Heart Disease
ACHA, PCHA and CHF are bringing over 150 advocates from across the country to meet with their elected officials today in Washington, D.C., to raise awareness and gain support for congenital heart disease research and surveillance. It is easy to join this effort from home by contacting your members of Congress to ask for their support in these ways...
The Adult Congenital Heart Association is excited to announce that Actelion Pharmaceuticals US, Inc. has awarded ACHA with funding to support 2016 program activities.
CONTACT YOUR MEMBERS OF CONGRESS TODAY! Ask them to cosponsor the Congenital Heart Futures Reauthorization Act!
Senator Dick Durbin (D-IL) and Senator Robert P. Casey, Jr. (D-PA) along with Representatives Gus Bilirakis (R-FL) and Adam Schiff (D-CA) introduced the Congenital Heart Futures Reauthorization Act (CHFRA) today, November 5, 2015. Ask your Senators and your Representative to sign on as a cosponsor to this important legislation!
ACHA is pleased to announce its participation in the 2015 Combined Federal Campaign!
The Combined Federal Campaign (CFC), a federal program administered by the Office of Personnel Management (OPM), is the world’s most successful annual workplace charity campaign.
ACHA is pleased to be working with key members at the government relations firm Cavarocchi Ruscio Dennis (CRD) Associates to develop and implement a new comprehensive advocacy strategy. Our team has been busy meeting with key stakeholders, including members of the Board, Medical Advisory Board, patients and family members to develop an advocacy plan that raises awareness of adult congenital heart disease and ACHA’s profile in Washington, D.C.
ACHA is happy to announce a new leadership role, Senior Ambassador, within the Heart to Heart program. A Heart to Heart Senior Ambassador is an Ambassador who has successfully served in their current role for at least two years. Senior Ambassadors are interested in providing support, guidance, education and resources to other ambassadors and local CHD programs.
Please join me in welcoming the newest member of the ACHA team, National Director of Development Georgia Krehbiel. Some of you may have met Georgia in April at our Los Angeles Regional Event, where she hit the ground running before her official start date later in the month.
It is our honor and pleasure to personally express our appreciation and to give special recognition to our ACHA volunteers—the Board of Directors and Medical Advisory Board, Heart to Heart Ambassadors, Congenital Heart Walk chairs and committee members, volunteer fundraisers, Young Professionals Committee, ACHA bloggers, and so many more. You motivate us and keep us fully engaged in creating a brighter tomorrow for those born today—those living with, those surviving and those flourishing with CHD.