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A Tribute to Dr. Gary Webb, Longtime ACHA Supporter and ACHD Pioneer

Friday, Oct 22, 2021

We mourn the recent loss of Gary D. Webb, MD, an internationally recognized leader in adult congenital heart disease (ACHD), and avid ACHA supporter and champion for the patient voice. Dr. Webb provided leadership and advice for more than two decades as a valued member of both the ACHA Medical Advisory Board and ACHA Emeritus Medical Advisory Board.

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Board of Directors Recruitment Period Opens

Tuesday, Sep 14, 2021

The Adult Congenital Heart Association is currently recruiting highly-qualified candidates to serve on the ACHA Board of Directors (BOD). To learn more about the roles, responsibilities and qualifications for our BOD, please click here.

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Volunteer Spotlight: Ted Wagner

Monday, Aug 16, 2021

A Q&A with the Captain of TEAM BEN HEART WARRIORS and Southern California Walk for 1 in 100 Supporter

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Returning to Your College Campus During COVID-19

Friday, Jul 30, 2021

Colleges and universities are getting ready to have students back on campus for Fall 2021. Some are requiring that all students be vaccinated with one of the COVID-19 vaccines—Pfizer-BioNTech, Moderna, or Johnson & Johnsonbefore returning to campus. To see if your school is on that list, click here.

Others are recommending, but not requiring, that students get fully vaccinated before the fall semester starts. Most campuses will have a mixture of students who are fully vaccinated and those who are not.

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ACHA Announces 4 New Research Awards

Monday, Jul 12, 2021

ACHA has committed $300,000 to 10 grants in our emerging research program since the program launched just two years ago.

As the only national patient advocacy organization specifically funding adult congenital heart disease (ACHD) research only, ACHA aims to partner with specialized medical professionals to improve patient outcomes for current and future generations of ACHD patients.

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ACHA Debuts New Website, Mission, and More

Tuesday, Jun 29, 2021

We are thrilled to share our updated website today, which has been refreshed with usability and simplicity in mind for our supporters and the greater congenital heart disease (CHD) community. We know that people across the country are accessing our website for a wealth of information, but especially in some key areas—such as defect-specific educational resources and the ACHD Clinic Directory. With that in mind, we have made these areas and other priority program content the core of our homepage, and easily accessible with fewer clicks.

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Volunteer Spotlight: The Maryland ACHD Walkers

Wednesday, Jun 16, 2021

A Q&A with Team Captain Kelly DiMaggio, and Dr. Stacy Fisher, Director of the ACHD Program at the University of Maryland Medical System.

(The Maryland ACHD Walkers are the largest medical center team to walk for 1 in 100 nationwide. In 2019, they raised more than $11,000.)

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Recruitment for ACHA's New Patient & Family Advisory Board Begins

Tuesday, May 11, 2021

The Adult Congenital Heart Association is committed to creating a culture where patients and families across the country are empowered to communicate with Board and staff leadership in a collaborative effort to promote understanding and outcomes. ACHA's Patient & Family Advisory Board (PFAB) ensures the existence of an effective organizational mechanism for receiving and responding to diverse consumer perspectives on an ongoing basis.

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ACHA Announces 9th National Conference Honorary Co-Chairs

Wednesday, Apr 14, 2021

ACHA is pleased to announce the appointment of Wayne Franklin, MD, and Christy Sillman, NP, as Honorary Co-Chairs of our 9th National Conference. The conference will take place June 23-25, 2022. Details and registration are available here.

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ACHA's Newest Research Grant Application is Now Available

Wednesday, Dec 16, 2020

ACHA has always made sure to let our community know how important research is in improving the quality of care and the quality of life for adults with congenital heart disease (CHD). It's a crucial part of our mission.

And as we announced in 2018, research is a part of our strategic plan with this overall goal: Fund research to improve the lives of CHD patients and future generations in partnership with medical professionals.

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Contact Congress Today

Demand better research, surveillance, and awareness of ACHD by calling on Congress to act now on the Congenital Heart Futures Reauthorization Act of 2024. Contact your elected officials today.