As you read this, nearly 200 fellow advocates are on Capitol Hill meeting with their Members of Congress as part of the 2018 Congenital Heart Legislative Conference. They are asking their lawmakers to support research, data collection and awareness activities related to congenital heart disease (CHD). This includes recruitment of co-sponsors in the Senate for the reintroduced Congenital Heart Futures Reauthorization Act of 2017.
We need you to participate from home!
ACHA Applauds the House of Representatives for Passing the Congenital Heart Futures Reauthorization Act
We applaud the House of Representatives for passage of the Congenital Heart Futures Reauthorization Act (CHFRA), H.R. 1222.
Congenital heart defects are the most prevalent category of birth defects, affecting nearly 1 in 100 babies; more than five percent will not live to see their first birthday, and those who receive successful intervention are not cured. Children and adults with congenital heart disease (CHD) require ongoing, costly, specialized cardiac care, and face a lifelong risk of permanent disability and premature death.
February is Heart Month and we’re asking all of you to help us spread awareness of CHD and lifelong care by sharing the items we post on our social media networks. Many of you do this already throughout the year, but we are asking ALL our members to take note of our posts this month and pass them on. You may have noticed that our theme for this year’s Heart Month is Empowerment: Taking Control of your CHD, which we hope resonates with all of you.
As part of ACHA's new Vision 2025, our guide for the future, we are excited to announce our new strategic plan for 2018-2020. ACHA recognizes the value in and responsibility for creating a meaningful multi-year strategic plan that will guide us to be the foremost resource for the CHD community. We worked to create a clear outcome by engaging our most critical stakeholders on this important journey.
We are thankful for our 2017 Congenital Heart Champions.
As a non-profit organization, one of the biggest things ACHA depends on is funding consistency, so that we can continue to serve the growing CHD community. Our Congenital Heart Champions are a special group of supporters who are so passionate about our mission that they donate monthly. Join this growing circle by signing up today.
The House of Representatives and Senate are each working on tax reform legislation. If enacted, the bills would make a number of significant changes to our nation’s tax code and some of these policies would impact health care.
Regardless of the implications of the other parts of the bill, these provisions will potentially increase costs and decrease access for people with CHDs and other high-cost, chronic conditions. We need everyone to call their Senators and Representative and express our concerns about the tax reform proposals.
Yesterday, President Trump signed an executive order that will affect health insurance coverage for Americans. He seeks to increase competition by facilitating access to association health plans (small businesses can join together to purchase insurance coverage through associations), short-term limited duration insurance products (plans that last less than a year), and health reimbursement arrangements (employers can give employees money to purchase insurance rather than provide it directly). Nothing is changing immediately; rather, President Trump has directed several government agencies to draft regulations to implement these new policies over the next 60 to 120 days.
Next week the Senate is expected to take up the ACA repeal plan introduced by Senators Graham (R-SC), Cassidy (R-LA), Heller (R-NV) and Johnson (R-WI). The plan (being referred to as Graham-Cassidy-Heller-Johnson or Graham-Cassidy) is just as harmful to patient protections as previous legislation considered in Congress this year. Graham-Cassidy would make significant changes to the individual insurance markets and the funding formula for Medicaid.
We need all CHD advocates to contact their members one more time before the Senate votes on the proposal next week. While some provisions of Graham-Cassidy differ from the other ACA repeal proposals, this bill, like those that preceded it, invalidates the patient protections important to adults with CHDs.
Eleven Centers Throughout United States First to Earn ACHA Adult Congenital Heart Disease (ACHD) Accreditation
Individuals with congenital heart disease (CHD), the most common birth defect diagnosed in one in 100 births, are living longer. In fact, there are now 1.4 million adults in the U.S., more than children, currently living with one of the many different types of congenital heart defects that range among simple, moderate, and complex. To better serve this population, the Adult Congenital Heart Association (ACHA), the only organization in the country that specifically serves adults with CHD, announced the launch of the ACHA Adult Congenital Heart Disease (ACHD) accreditation program. This accreditation program will provide a community of support and network of experts with knowledge of the disease. To date, 11 centers have earned the ACHA ACHD Accredited Comprehensive Care Center designation.