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Webinar Update: Post Mustard and Senning in the ACHD Patient, Jan. 17

Tuesday, Jan 03, 2012

ACHA announces its newest webinar, "Post Mustard and Senning in the Adult Congenital Heart Patient," presented by Gary D. Webb, MD, on Tuesday, Jan. 17, 2012, from 7-8 p.m. EST. The webinar will cover the four main issues that might show up after these procedures. Dr. Webb will also discuss why close observation by an ACHD expert is important and share steps you can to take to lead as productive a life as possible. To register, click here.

This webinar was made possible in part by an unrestricted educational grant from Actelion.

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Webinar Update: Eisenmenger Syndrome in the ACHD Patient, Jan. 23

Friday, Dec 30, 2011

ACHA announces its newest webinar, "Eisenmenger Syndrome in the Adult Congenital Heart Patient," presented by Curt J. Daniels, MD, FACC, on Monday, Jan. 23, 2012, from 7-8 p.m. EST. The webinar will cover what causes Eisenmenger syndrome and how it is diagnosed, as well as available treatments and steps you can take to avoid complications and lead as productive a life as possible. To register, click here.

This webinar was made possible in part by an unrestricted educational grant from Actelion.

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$2 Million Directed to the CDC for Congenital Heart Disease Surveillance

Friday, Dec 16, 2011

In the budget reconciliation bill, passed by both the House and Senate today, $2 million was appropriated to the Centers for Disease Control and Prevention (CDC) to address epidemiological and longitudinal data on individuals of all ages with congenital heart disease.

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Leadership Update: ACHA's New Strategic Plan

Tuesday, Dec 13, 2011

As 2011 comes to a close, we here at ACHA are thinking not only about 2012, but also about ACHA’s future. In order to ensure that ACHA continues to provide vital programming to our members, we recently participated in a strategic planning process that required ACHA’s staff and leaders to think long and hard about ACHA’s work and mission moving forward. Out of this process came ACHA’s 2012-2014 Strategic Plan, and I am delighted to share a brief summary of our new goals and strategies.

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Medtronic Foundation Donates to ACHA on Behalf of Global Heroes

Thursday, Dec 08, 2011

The Medtronic Foundation recently donated $1,000 to the Adult Congenital Heart Association on behalf of Medtronic Global Hero Mike Nall, who supports heart-related missions. Nall has a stent to treat coronary artery disease and was chosen by the Medtronic Twin Cities Marathon to be part of its 2011 class of 25 Global Heroes, after a worldwide search for runners whose lives have been improved with the help of medical devices.

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Parental Knowledge Study Findings Published in Pediatrics

Wednesday, Nov 30, 2011

Findings from ACHA’s Parental Knowledge Study were published this week in the online version of Pediatrics, the official journal of the American Academy of Pediatrics. Click here for the abstract of the article, "Parental Knowledge Regarding Lifelong Congenital Cardiac Care."

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Webinar Update: The Adult Congenital Heart Patient Living with Bicuspid Aortic Valve, Dec. 6

Tuesday, Nov 15, 2011

ACHA announces its newest webinar, "The Adult Congenital Heart Patient Living with Bicuspid Aortic Valve," presented by Jorge Alegria, MD, on Tuesday, Dec. 6, 2011, from 7-8 p.m. EST. The webinar will cover what a bicuspid aortic valve is, recommendations for treatment, and how to lead as productive a life as possible with this congenital heart defect. To register, click here.

This webinar was made possible in part by an unrestricted educational grant from Actelion.

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ACHA Receives Grant to Support Heart to Heart Ambassadors Program

Monday, Nov 07, 2011

Edwards Lifesciences LLC awarded ACHA with a $50,000 grant to support our Heart to Heart Ambassadors Program in 2011 and 2012.

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A Video Update from ACHA's President

Friday, Nov 04, 2011

Please join us in a moment of reflection to consider what, together, ACHA and its members were able to achieve in 2011! Watch Amy Verstappen, our president and CEO, talk about our progress.

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Webinar Update: Managing Holiday Stress, Nov. 10

Tuesday, Oct 25, 2011

ACHA announces its newest webinar, "Managing Holiday Stress," presented by Jamie Jackson, PhD, on Thursday, Nov. 10, 2011, from 7-8 p.m. EST. The webinar will cover stress, simple ways to take care of yourself and manage your stress, and how stress management helps you to stay healthy while improving your enjoyment of the holidays. To register, click here.

This webinar was made possible in part by an unrestricted educational grant from Actelion.

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ACHA on Capitol Hill

Our volunteers are in DC and online to request full funding for CHD programs authorized under the Congenital Heart Futures Reauthorization Act of 2024. Act now to support our efforts by emailing ACHA’s prewritten letters to your elected officials!