News

Call your Senators who serve on the HELP Committee

Monday, Jul 23, 2018

We need your help!  We need all ACHA Congenital Heart Disease (CHD) Activists (advocating for those affected by CHD) whose Senators serve on the HELP Committee (list below) to call them and ask them to support the bill in the upcoming markup on Wednesday.  If you live in one of the relevant states, please call your Senator today!

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Board of Directors Recruitment Period Opens

Friday, Jul 20, 2018

The Adult Congenital Heart Association is currently recruiting highly-qualified candidates to serve on the ACHA Board of Directors (BOD). To learn more about the roles, responsibilities and qualifications for our BOD, please click here.

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Kristin Edwards Becomes Houston's Community Development Coordinator

Monday, Jul 16, 2018

The only organization in the country that specifically serves adults with congenital heart disease (CHD), the Adult Congenital Heart Association (ACHA) has named Kristin Edwards Community Development Coordinator for Houston—one of six and the final region ACHA has targeted for expansion in 2018. In this role, Edwards will plan, implement, and lead local program and development initiatives, including patient and family education and support groups, CHD conferences, fundraising and volunteer activities, and overall community outreach.

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ACHA Welcomes Eliza Fernie as Community Development Coordinator in Colorado

Monday, Jul 09, 2018

The only organization in the country that specifically serves adults with congenital heart disease (CHD), the Adult Congenital Heart Association (ACHA) has named Eliza Fernie Community Development Coordinator for Denver. In this role, Fernie will plan, implement, and lead local program and development initiatives, including patient and family education and resource groups, CHD conferences, fundraising and volunteer activities, and overall community outreach.

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Margaret High-Thomas Named Community Development Coordinator in Columbus Ohio

Thursday, May 31, 2018

The only organization in the country that specifically serves adults with congenital heart disease (CHD), the Adult Congenital Heart Association (ACHA) has named Margaret High-Thomas Community Development Coordinator for Columbus—one of five regions ACHA has targeted for expansion this year. In this role, High-Thomas will plan, implement, and lead local program and development initiatives, including patient and family education and support groups, CHD conferences, fundraising and volunteer activities, and overall community outreach.

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New Los Angeles Community Development Coordinator: Emily Earhart

Thursday, May 31, 2018

The only organization in the country that specifically serves adults with congenital heart disease (CHD), the Adult Congenital Heart Association (ACHA) has named Emily Earhart Community Development Coordinator for Los Angeles—one of five regions ACHA has targeted for expansion this year. In this role, Los Angeles native Earhart will plan, implement, and lead local program and development initiatives, including patient and family education and support groups, CHD conferences, fundraising and volunteer activities, and overall community outreach.

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Introducing Greater Philadelphia’s New Community Development Coordinator Trawana Porter

Wednesday, Apr 25, 2018

The Adult Congenital Heart Association (ACHA), the only organization in the country that specifically serves adults with congenital heart disease (CHD), has named Trawana Porter Community Development Coordinator for Greater Philadelphia. In this role, Porter will plan, implement, and lead local program and development initiatives, including patient and family education and support groups, CHD conferences, fundraising and volunteer activities, and overall community outreach.

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April 2018 President/CEO Letter: National Conference and Events Update

Wednesday, Apr 18, 2018

In the past few weeks, I have heard from several constituents inquiring about the timing and location for the next ACHA National Conference, so I want to provide an update to our full membership.

The ACHA National Conference—our premier event that gathers both patient/family members and medical providers—has recently taken place every three years (2011 in L.A., 2014 in Chicago, 2017 in Orlando). Following that cycle, our next Conference year would be 2020, and that is the target we are working toward. However, we want to make sure there are enhanced opportunities for gatherings in the “off years” as well.

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Urge Your Members of Congress to Sign the Durbin-Grassley FY 2019 CHD Appropriations Letter

Wednesday, Mar 28, 2018

You don’t have to be in Washington, DC to advocate for CHD support. Contact your Senators today!

Senate Sign-On Deadline: Tuesday, April 3, at Noon

As Congress considers its Fiscal Year 2019 federal spending bills, ACHA asks that you urge your two Senators to sign the Durbin-Grassley Fiscal 2019 Appropriations Letter in support of funding for the CDC program to address the lifelong needs Americans with congenital heart defects (CHDs). Members of Congress send letters outlining their funding priorities for the next year, and we want as many people to sign onto the letter as possible!

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Nicole Fernandez: New Community Development Coordinator of Greater Boston

Thursday, Mar 22, 2018

The Adult Congenital Heart Association (ACHA) has named Nicole Fernandez Community Development Coordinator for Greater Boston, re-establishing a formal presence in the city where it was founded 20 years ago by a young woman who sought support and resources related to congenital heart disease (CHD). In this role, Fernandez will plan, implement, and lead local program and development initiatives, including patient and family education and support groups, CHD conferences, fundraising and volunteer activities, and overall community outreach.

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