The Medtronic Foundation, Actelion Pharmaceuticals US, Inc, and Gilead Sciences, Inc. awards help fund ACHA programs through 2012.
ACHA announces its newest webinar, "Patient-Centered Care and Outcomes," presented by ACHA Research Manager Ann Gianola on Thursday, Oct. 27, 2011, from 7-8 p.m. EDT. The webinar will cover patient-centered care and help you understand what you can do to play a major role in planning your health care. To register, click here.
This webinar was made possible in part by an unrestricted educational grant from Actelion.
ACHA would like to thank all of our Professional Members whose membership not only supports the vital work ACHA does to improve health for adults with CHD, but demonstrates that as a medical professional you have a vital stake in ACHA’s mission. Click here to see ACHA’s most recent quarterly published Professional Members listing.
ACHA announces its newest webinar, "Aging with Tetralogy of Fallot," presented by Naser Ammash, MD, on Thursday, September 15, 2011, from 7-8 p.m. EDT. The webinar will cover all the pertinent issues that a patient or a family member or friend of a patient with repaired Tetralogy of Fallot will want to know. To register, click here.
ACHA announces its newest webinar, "Parlez-Vous Medicinese? Talking with Your Doctor When You’re Speaking Different Languages," presented by Ruth Phillippi, MS, on Tuesday, August 16, 2011, from 7-8 p.m. EDT. The webinar will provide information about the differences in how doctors and patients think about CHD, as well as how to talk with your doctor and feel like you’re on the same team. To register, click here.
Here at the Adult Congenital Heart Association, we want to hear more about your experiences growing up as a child with CHD. We are soliciting this member input for use in developing ACHA's official presentation when addressing parent groups. We hope that you'll get involved and share your story!
Thanks in part to the many ACHA members who shared their stories of disability struggles, yesterday the Social Security Administration announced that it has added seven congenital heart diagnoses to its Compassionate Allowance listings.