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ACHD Certification to Begin This Year

Monday, Mar 09, 2015

We are happy to announce to our members and supporters that the American Board of Internal Medicine (ABIM) is preparing to offer the Adult Congenital Heart Disease (ACHD) Certification Examination for the first time on October 20, 2015.

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110+ Congenital Heart Disease Advocates Visit D.C.

Friday, Mar 06, 2015

What an exciting Congenital Heart Legislative Conference in Washington, D.C., February 25-26! Teaming up together, the Adult Congenital Heart Association, Children’s Heart Foundation and the Pediatric Congenital Heart Association brought together 116 advocates from 29 states who attended more than 130 meetings with Senators, Representatives and their staffs to spread the word about congenital heart disease.

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A Community United: Contact Your Legislators on February 26

Wednesday, Feb 25, 2015

On February 26, 2015, more than 130 congenital heart disease (CHD) advocates will be reaching out to their lawmakers in Washington, D.C., to ask for three simple things. We hope you will join from home, too!

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ACHA Ambassadors Participating in Research Community

Thursday, Feb 19, 2015

Patient Outcomes Research to Advance Learning (PORTAL) is a new collaboration of four healthcare delivery systems—Kaiser Permanente, Group Health Cooperative, HealthPartners, and Denver Health—and their 11 research centers. These partners are conducting research comparing the effectiveness and safety of preventive, diagnostic, and treatment options for congenital heart disease (CHD). During 2014 and 2015, PORTAL will identify high-priority research questions for CHD.

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Join ACHA in Spreading CHD Awareness in February!

Sunday, Feb 01, 2015

This February during Heart Month, and especially during Congenital Heart Disease Awareness Week (February 7-14), the Adult Congenital Heart Association wants to educate the public about CHD—specifically that congenital heart defects are the number one birth defect and that they require lifelong care.

Whether you have CHD or a loved one in your life with CHD, there are many things you can do to help us spread the word.

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ACHA Announces 2015-2017 Strategic Plan

Tuesday, Jan 06, 2015

We are excited to announce our strategic plan for 2015-2017, consisting of five main strategic objectives. As our vision states, ACHA will be the leading voice in congenital heart disease education and advocacy, and raise the public awareness of congenital heart disease as a lifelong disease; improve the standards for access to and delivery of quality care for adults with congenital heart disease; and, in collaboration with our partners, will drive the public policy agenda affecting adults with congenital heart disease.

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Update on $4 Million for Federal CHD Funding

Wednesday, Dec 10, 2014

We are excited to announce that the end of the year Omnibus Appropriations bill was filed last night, which includes a line item for congenital heart defects. The agreement provides $4 million to expand the Centers for Disease Control and Prevention's surveillance of CHD among adolescents and adults in order to better understand issues relating to CHD incidence, prevalence, disparities and barriers to optimal care for those with CHD.

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Introducing ACHA's Incoming Ambassadors

Tuesday, Oct 21, 2014

ACHA is pleased to announce and welcome our nine newest Heart to Heart Ambassadors!

These future Ambassadors will help provide information and support to you, our members, beginning January 2015. Our newest Ambassadors went through an extensive application, interview and training process. Their personal experience as a patient or a family member gives them a unique perspective on many issues our members face.

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Celebrating the Life of Dr. Joseph K. Perloff

Friday, Aug 22, 2014

This letter to the UCLA community was provided for ACHA to share by the Ahmanson/UCLA Adult Congenital Heart Disease Center:

Dear Colleagues,

It is with great sorrow that we report to you that Professor Joseph K. Perloff, the founding Director of the Ahmanson/UCLA Adult Congenital Heart Disease Center, passed away on the morning of August 18, 2014 at his home in Pacific Palisades, California. He was 89.

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Make an Impact: Join Our Board

Monday, Jun 09, 2014

The Adult Congenital Heart Association (ACHA) is looking for its next generation of leaders to fill critical positions on our national Board of Directors, the elected group of volunteers who support the work of ACHA and provide mission-based leadership and strategic governance. The Nominating Committee needs your help in identifying candidates for the Board!

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