Azaleas in bloom, pollen in the air, and our Congenital Heart Walk around the corner—it must be May in Philadelphia! Over the past two years, I have had the pleasure of attending Congenital Heart Walks all over the country. Whether in Oakland or Ohio, Congenital Heart Walk attendees share remarkable qualities.
ACHA is excited to announce another step in the right direction!
As you know, the 2012 budget that was passed in December 2011 included $2 million in funding to the Centers for Disease Control and Prevention (CDC) for congenital heart disease (CHD) surveillance. On Monday, April 9, the CDC announced plans to use that money!
Have a question you’ve always wanted to ask ACHA? If so, you can participate in a new feature and “Ask Captain Cardio” your question! Simply e-mail your question—any question—to CaptainCardio@achaheart.org, and we will choose questions and answers to publish in our monthly e-newsletters.
ACHA announces its newest webinar, "Living with Truncus Arteriosus," presented by Mike McConnell, MD, on Tuesday, April 17, 2012, from 7-8 p.m. EDT. The webinar will cover what it means to have TA and what surgical options are available, as well as what issues to look for in adulthood. Attendees will also learn how to lead as productive a life as possible. To register, click here.
This webinar was made possible in part by an unrestricted educational grant from Actelion.
This year, ACHA set an ambitious goal to raise $40,000 in the month of February through the Meil Family Foundation Valentine Challenge. For those of you not keeping track, that’s 42% more funding than in 2011. Our donors rose to the challenge and raised more than $44,000 for ACHA through their personal gifts and solicitations of family members and friends!
“Immortal Bird: A Family Memoir” author Doron Weber will join the Adult Congenital Heart Association and Mended Little Hearts members on Capitol Hill on March 1, 2010, to lobby for needed research and surveillance for congenital heart disease.
We are excited to announce that Actelion Pharmaceuticals US, Inc. has awarded ACHA with two grants totaling $200,000 to support 2012 program activities.
Our goal for Congenital Heart Lobby Day 2012 on March 1, 2012, is to meet with our legislators and celebrate our successes. However, we realize this is only the beginning. We need to motivate our members of Congress to learn more and do more. We will be asking them to continue funding the CDC so we can learn more about prevalence, barriers to effective care, survival outcomes and neurocognitive outcomes, and to increase funding to the National Institutes of Health (NIH) for CHD research. New this year, we will be asking our members of the House to join the Congenital Heart Caucus. Representatives can join this group, chaired by Congressman Gus Bilirakis, to show their support and receive continued information about issues related to CHD, including what the federal government can do to save money and save lives.
Register for Lobby Day by clicking here.