News

ACHA Participates in CHD Briefing on Capitol Hill

Tuesday, Sep 27, 2011

On Sept. 19, 2011, the Adult Congenital Heart Association had a unique opportunity to participate in the "Congenital Heart Defects: A Lifelong Disease" briefing on Capitol Hill in Washington, D.C.

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New Member Stories: CHD Over 60

Monday, Sep 19, 2011

ACHA has recently created a new webpage, CHD Over 60, as a new avenue to showcase member stories monthly. Click here to read the first profile on Marilyn Petrosie, which includes a link to a 1947 article about Marilyn in her local newspaper.

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Insurance and SSI Webpage Updated

Wednesday, Sep 07, 2011

We are excited to announce that our Insurance and SSI webpage has recently been updated!

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Webinar Update: Aging with Tetralogy of Fallot, Sept 15

Wednesday, Aug 17, 2011

ACHA announces its newest webinar, "Aging with Tetralogy of Fallot," presented by Naser Ammash, MD, on Thursday, September 15, 2011, from 7-8 p.m. EDT. The webinar will cover all the pertinent issues that a patient or a family member or friend of a patient with repaired Tetralogy of Fallot will want to know. To register, click here.

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Webinar Update: Talking with Your Doctor

Monday, Aug 08, 2011

ACHA announces its newest webinar, "Parlez-Vous Medicinese? Talking with Your Doctor When You’re Speaking Different Languages," presented by Ruth Phillippi, MS, on Tuesday, August 16, 2011, from 7-8 p.m. EDT. The webinar will provide information about the differences in how doctors and patients think about CHD, as well as how to talk with your doctor and feel like you’re on the same team. To register, click here.

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Growing Up with CHD: Share Your Story

Monday, Aug 01, 2011

Here at the Adult Congenital Heart Association, we want to hear more about your experiences growing up as a child with CHD. We are soliciting this member input for use in developing ACHA's official presentation when addressing parent groups. We hope that you'll get involved and share your story!

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Social Security Administration "Fast Tracks" 7 CHDs

Friday, Jul 15, 2011

Thanks in part to the many ACHA members who shared their stories of disability struggles, yesterday the Social Security Administration announced that it has added seven congenital heart diagnoses to its Compassionate Allowance listings.

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ACHA's Newly Published Professional Members List

Monday, Jul 11, 2011

ACHA would like to thank all of our Professional Members whose membership not only supports the vital work ACHA does to improve health for adults with CHD, but demonstrates that as a medical professional you have a vital stake in ACHA’s mission. Click here to see ACHA’s quarterly published Professional Members listing.

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Updated ACHD Program and Travel Directories Now Available

Friday, Jul 08, 2011

The ACHA/ISACHD Program Directory, available at the ACHA website by clicking here, is a unique online resource offering extensive up-to-date (2010) information on more than 95 adult congenital heart programs in the United States and Canada. Whether you are looking for an ACHD program in your area (search by state), seeking a surgeon with particular ACHD expertise, helping a patient find care, or learning more about what an ACHD program offers, the ACHD program directory can help you find the answers you need.

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Leadership Update: Partnering With Parents

Wednesday, Jun 22, 2011

In her monthly update, ACHA President/CEO writes about ACHA's relationships with other groups that provide support to parents of children with CHD.

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