News

Webinar Update: Living with Truncus Arteriosus, April 17

Wednesday, Mar 28, 2012

ACHA announces its newest webinar, "Living with Truncus Arteriosus," presented by Mike McConnell, MD, on Tuesday, April 17, 2012, from 7-8 p.m. EDT. The webinar will cover what it means to have TA and what surgical options are available, as well as what issues to look for in adulthood. Attendees will also learn how to lead as productive a life as possible. To register, click here.

This webinar was made possible in part by an unrestricted educational grant from Actelion.

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Results: The Meil Family Foundation Valentine Challenge

Tuesday, Mar 13, 2012

This year, ACHA set an ambitious goal to raise $40,000 in the month of February through the Meil Family Foundation Valentine Challenge. For those of you not keeping track, that’s 42% more funding than in 2011. Our donors rose to the challenge and raised more than $44,000 for ACHA through their personal gifts and solicitations of family members and friends!

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Noted Author to Attend Congenital Heart Lobby Day on March 1

Monday, Feb 27, 2012

“Immortal Bird: A Family Memoir” author Doron Weber will join the Adult Congenital Heart Association and Mended Little Hearts members on Capitol Hill on March 1, 2010, to lobby for needed research and surveillance for congenital heart disease.

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Leadership Update: Happy Valentine's Day!

Tuesday, Feb 14, 2012

February is a special month for the congenital heart community, as we promote congenital heart awareness and remind the world that for some of us, hearts are more than Valentine's Day decor.

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ACHA Receives 2 Grants to Support Programs for ACHD Medical Providers and Patients

Wednesday, Jan 11, 2012

We are excited to announce that Actelion Pharmaceuticals US, Inc. has awarded ACHA with two grants totaling $200,000 to support 2012 program activities.

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National Congenital Heart Lobby Day: Join Us!

Monday, Jan 09, 2012

Our goal for Congenital Heart Lobby Day 2012 on March 1, 2012, is to meet with our legislators and celebrate our successes. However, we realize this is only the beginning. We need to motivate our members of Congress to learn more and do more. We will be asking them to continue funding the CDC so we can learn more about prevalence, barriers to effective care, survival outcomes and neurocognitive outcomes, and to increase funding to the National Institutes of Health (NIH) for CHD research. New this year, we will be asking our members of the House to join the Congenital Heart Caucus. Representatives can join this group, chaired by Congressman Gus Bilirakis, to show their support and receive continued information about issues related to CHD, including what the federal government can do to save money and save lives.

Register for Lobby Day by clicking here.

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Webinar Update: Post Mustard and Senning in the ACHD Patient, Jan. 17

Tuesday, Jan 03, 2012

ACHA announces its newest webinar, "Post Mustard and Senning in the Adult Congenital Heart Patient," presented by Gary D. Webb, MD, on Tuesday, Jan. 17, 2012, from 7-8 p.m. EST. The webinar will cover the four main issues that might show up after these procedures. Dr. Webb will also discuss why close observation by an ACHD expert is important and share steps you can to take to lead as productive a life as possible. To register, click here.

This webinar was made possible in part by an unrestricted educational grant from Actelion.

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Webinar Update: Eisenmenger Syndrome in the ACHD Patient, Jan. 23

Friday, Dec 30, 2011

ACHA announces its newest webinar, "Eisenmenger Syndrome in the Adult Congenital Heart Patient," presented by Curt J. Daniels, MD, FACC, on Monday, Jan. 23, 2012, from 7-8 p.m. EST. The webinar will cover what causes Eisenmenger syndrome and how it is diagnosed, as well as available treatments and steps you can take to avoid complications and lead as productive a life as possible. To register, click here.

This webinar was made possible in part by an unrestricted educational grant from Actelion.

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$2 Million Directed to the CDC for Congenital Heart Disease Surveillance

Friday, Dec 16, 2011

In the budget reconciliation bill, passed by both the House and Senate today, $2 million was appropriated to the Centers for Disease Control and Prevention (CDC) to address epidemiological and longitudinal data on individuals of all ages with congenital heart disease.

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Leadership Update: ACHA's New Strategic Plan

Tuesday, Dec 13, 2011

As 2011 comes to a close, we here at ACHA are thinking not only about 2012, but also about ACHA’s future. In order to ensure that ACHA continues to provide vital programming to our members, we recently participated in a strategic planning process that required ACHA’s staff and leaders to think long and hard about ACHA’s work and mission moving forward. Out of this process came ACHA’s 2012-2014 Strategic Plan, and I am delighted to share a brief summary of our new goals and strategies.

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