News

Advocacy Alert: Notice About Legislative Changes

Tuesday, Nov 22, 2016

As the dust settles on last week’s election, many people have been wondering what challenges and opportunities the adult congenital heart disease (ACHD) community will exist with the new Trump administration and new Congress next year. 

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Legislative Action Alert: Contact Your Members of Congress Today

Wednesday, Sep 07, 2016

On Thursday, Sept. 8, 2016, the House Energy & Commerce Committee is holding a hearing on the Congenital Heart Futures Re-authorization Act (CHFRA).  As you know, the Adult Congenital Heart Association (ACHA) has been working hard since this bill’s introduction last fall to support its passage.  This hearing is an important step towards enactment. 

This ACHA-endorsed legislation reauthorizes the Congenital Heart Futures Act, enacted in 2010, that expanded the infrastructure to track congenital heart disease (CHD) at the Centers for Disease Control and Prevention (CDC) and increased research on CHD at the National Institutes of Health (NIH).

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Closing the Care Gap for Patients With Adult Congenital Heart Disease

Wednesday, Jul 20, 2016

The Adult Congenital Heart Association (ACHA) announced today the launch of their ACHA ACHD Accreditation Program. This is a significant milestone as this program establishes a concrete set of criteria that strives to provide high quality care for adult congenital heart disease (ACHD) patients.

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Call for Abstracts – ACHA 8th National Conference

Friday, Apr 01, 2016

October 7-8, 2016, Doubletree Universal Studios Orlando
Submission Deadline: Now Closed

Abstracts are being accepted for the Research Symposium at ACHA’s 8th National conference. One moderated poster session will take place on Friday, October 7, 2016 from 4:30 p.m. – 6:00 p.m., highlighting 16-20 abstracts. Presenters are asked to discuss their work for five minutes, plus five minutes of time for directed questions and answers. Three abstracts will be chosen to be presented orally at the podium on Saturday morning, October 8, 2016. Podium presenters will receive a cash reward and a plaque.

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Action Alert: Ask Members of Congress to Support CHD Federal Funding

Monday, Mar 14, 2016

Contact your members of Congress today: Ask them to support federal funding for CHD activities!

As you know, ACHA’s advocacy work continues throughout the year beyond our CHD advocacy day in February. As one example, we are currently working to encourage Members of Congress to co-sign a letter supporting federal funding for the CHD activities at the Centers for Disease Control and Prevention (CDC).

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Make an Impact – Join Our Board

Friday, Mar 11, 2016

The Adult Congenital Heart Association (ACHA) is looking for leaders to fill positions on our national Board of Directors, the elected group of volunteers who support the work of ACHA and provide mission-based leadership and strategic governance. The Nominating Committee needs your help in identifying candidates for the Board; if you are interested or know of someone who’s interested please read on!

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Share What’s in Your Heart: Help ACHA Serve YOU

Wednesday, Feb 03, 2016

Thank you for supporting ACHA — we want to get a better understanding of what you need to improve and extend your lives through education, advocacy, and the promotion of research. Our goal is to find out what you want from ACHA so that we can bring the most value to you now and in the future. For example, let us know which programs you like, what may not be working for you and what more we could do.

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Contact Your Members of Congress from Home TODAY

Tuesday, Feb 02, 2016

Join Advocates on the Hill Lobbying to Raise Awareness of Congenital Heart Disease

ACHA, PCHA and CHF are bringing over 150 advocates from across the country to meet with their elected officials today in Washington, D.C., to raise awareness and gain support for congenital heart disease research and surveillance. It is easy to join this effort from home by contacting your members of Congress to ask for their support in these ways...

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Actelion Supports ACHA with 2016 Funding for ACHD Medical Providers and Patients

Wednesday, Jan 13, 2016

The Adult Congenital Heart Association is excited to announce that Actelion Pharmaceuticals US, Inc. has awarded ACHA with funding to support 2016 program activities.

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Action Alert: Congenital Heart Futures Reauthorization Act

Thursday, Nov 05, 2015

CONTACT YOUR MEMBERS OF CONGRESS TODAY! Ask them to cosponsor the Congenital Heart Futures Reauthorization Act!

Senator Dick Durbin (D-IL) and Senator Robert P. Casey, Jr. (D-PA) along with Representatives Gus Bilirakis (R-FL) and Adam Schiff (D-CA) introduced the Congenital Heart Futures Reauthorization Act (CHFRA) today, November 5, 2015. Ask your Senators and your Representative to sign on as a cosponsor to this important legislation!

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