California

California Heart Connection

California Heart Connection
PO Box 50063
Irvine, CA 92619
Attn: Debbie Hilton Kamm
Telephone: (949) 653-6421
E-mail: Debbie Hilton Kamm at caheartcon@aol.com
Website: www.caheartconnection.org

The Heart Connection

The Heart Connection
c/o Berkeley Cardiovascular
Alta Bates
2450 Ashby Avenue
Berkeley, CA 94705
Attn: Zoe
Telephone: (510) 204-1691 (ask for Zoe)
E-mail: J.M. Steinlauf at joyce966@applelinks.net

Colorado

Matters of the Heart

University Hospital Heart Center in Denver
Contact: Mary Brandon, RN
Telephone: (303) 372-0629
E-mail: mary.brandon@uch.edu

Illinois

Treasured Heart Support Group

Contact: Lynn Graham, RN
Telephone: (708) 327-9102

Northwestern Young Hearts

Northwestern Memorial Hospital
251 East Huron Street
Chicago, IL 60611
Contact:Linda Hellstedt, RN
Telephone: (312) 926-5130
E-mail: lhellste@nmh.org

Kansas

Heartland Hearts

3519 West 11th Street, N
Wichita, KS 67203-4337
Contact: Steph Crocker

Boston Adult Congenital Heart Service

Farley Building at Boston Children's, 2nd Floor
Contact: Jonas Bromberg, MD
Telephone: (617) 332-6028
E-mail: jonas_bromberg@hms.harvard.edu

Nebraska

Midwest Heart Connection

2203 Atlanta Street
Grand Island, NE 68803
Contact: Marci Smith
Telephone: (308) 389-3143
E-mail: president@midwestheartconnection.com
Contact: Tracy Adams
E-mail: tadams@mccooknet.com

New York

Pediatric Cardiology Family Network

New York University Medical Center
Contact: Dennis Sklenar
Telephone: (212) 263-8070, ext. 72990

North Carolina

Bless Their Hearts

P.O. Box 1072
Waxhaw, NC 28173
Telephone: (866) HEART-NC (toll-free in NC, SC, GA, TN, VA)

Pitt County Memorial Hospital

On-line discussion forum only

Tennessee

Saving Little Hearts

E-mail: info@savinglittlehearts.com
Website: www.savinglittlehearts.com

Washington

Beats & Rhythms, Inc.

924 North Malvern Road
Liberty Lake, WA 99019
Telephone: (509) 893-9071
E-mail: corsaro_family@juno.com

Bulgaria

Children's Heart Association

E-mail: guch@abv.bg

Finland

Synja (Sydännuoret ja -aikuiset)

Sydänlapset r.y.
Oltermannintie 8
00620 Helsinki
Finland
Europe
Telephone: (09) 752-75275
Fax: (09) 752-75276
E-mail: joonas.gustafsson@synja.net Website: www.synja.net/ (Finnish version)

France

Association Nationale des Cardiaques Congenitaux (ANCC)

Website: www.ancc.asso.fr/

Germany

Jugendliche und Erwachsene mit angeborenem Herzfehler (JEMAH)

Website: www.jemah.de/index.htm

Netherlands

Hartenark

Prof. Bronkhorstlaan 2
The Netherlands
Telephone: (030) 229-0244
E-mail: J.Schulze@hartstichting.nl

New Zealand

Adults with Congenital Heart Conditions (ACHC) New Zealand

Contact: Shelly
E-mail:ryehill@ihug.co.nz or
Contact: B ev
E-mail: achc@kdesign.co.nz
Website: http://homepages.ihug.co.nz/%7Eryehill/

Sweden

Unga Hjartslag

Unga Hjartslag arbetsgrup
Hjaärtebarnsförening
Box 9090
102 72 Stockholm
Website: www.ungahjartslag.org/

Switzerland

Cuore Matto

Contact: Caroline Suess, Secretary
Telephone: (062) 295 36 32
E-mail: info@cuorematto.ch

United Kingdom

Grown Up Congenital Heart (GUCH)

GUCH Patients Association
75 Tuddenham Avenue
Ipswich, Suffolk IP4 2HG
United Kingdom
Telephone: 0800 854759
Fax: 01375 676900
E-mail: john@guch.org.uk
Website: www.guch.org.uk/