Discussion Forum
A place for registered ACHA members to discuss issues with other members of the ACHA community and provide and receive support.

Compassionate Allowance Conditions

On July 14, 2011, the Social Security Administration added seven congenital heart diagnoses to its Compassionate Allowance listings.

Two groups of patients are targeted:

All Single Ventricle Patients: These are patients who have only one working pumping chamber in their heart. It includes anyone who underwent a Fontan procedure. Listed diagnoses are:

  • Hypoplastic Left Heart Syndrome
  • Aortic Atresia
  • Mitral Valve Atresia
  • Pulmonary Atresia
  • Tricuspid Atresia
  • Single Ventricle (not covered above)

All Eisenmenger Syndrome Patients: “Eisenmenger Syndrome” refers to a group of problems that can develop in patients born with many kinds of heart defects. It develops when defects are not fully repaired and cyanosis ("blueness") lasts over time. Symptoms include:

  • Chronic low oxygen levels
  • Blue lips, clubbing of fingers
  • Pulmonary hypertension
  • Problems with clotting