U.S. ACHD Resources
Disclaimer: The below resource listing is provided by the Adult Congenital Heart Association (ACHA) for informational purposes only. The presence of a link to or information about an online resource does not represent an endorsement or recommendation by ACHA. We make every effort to provide information that is accurate and timely, but make no guarantee in this regard. ACHA assumes no responsibility about the type, amount, quality of assistance, support or service provided by other agencies or organizations.
We encourage each person to thoroughly review any listed resource to make sure the services provided are appropriate for his/her needs. Each individual should consult with, and rely only on the advice of, his/her ACHD healthcare provider. The linked information is not a substitute for individual advice from an ACHD provider.
For ACHD resources in the United States, click here for the PDF.
Adults with Congenital Heart Conditions (ACHC) New Zealand
Association Nationale des Cardiaques Congénitaux (ANCC): French organization for CHD
Canadian Adult Congenital Heart Network (CACHNET)
Canadian Congenital Heart Alliance (CCHA)
Heart Defects Society of Windsor and Essex County (Canada)
Jugendliche und Erwachsene mit angeborenem Herzfehler (JEMAH) (German language only): German organization for adolescents and adults with CHD
Nederlandse Hartstichting (Dutch language only): Responsible for the Hartenark, a support group for people with CHD and their families
Nos enfants cardiaques: Belgian organization
Piccoli Cuori - Associazione O.N.L.U.S (Italian language only)
The Somerville Foundation - GUCH is an organization for ACHDers in the UK
2008 ACC/AHA Guidelines for the Management of Adults with Congenital Heart Disease
Care of the Adult With Congenital Heart Disease
Web Book: Adults with Congenital Heart Disease
American Heart Association CHD Page (English language version)
American Heart Association CHD Page (Spanish language version)
CACHNET: Adult Congenital Heart Disease Glossary
Cardiopatias Congenitas: CHD information and resources in Spanish
Heart Institute Encyclopedia (Cincinnati Children's Hospital Medical Center)
Heartpedia Mobile App (Cincinnati Children's Hospital Medical Center)
ISACHD: Glossary for Adult Congenital Heart Disease
March of Dimes Fact Sheet
Mayo Clinic Patient/Family Guide to Adult Congenital Heart Disease
PubMed: Free, web-based way to search Medline for medical article citations.
Royal Children's Hospital, Melbourne, Australia: Library of Heart Diagrams
Cove Point Foundation Congenital Heart Disease