Discussion Forum

A place for registered ACHA members to discuss issues with other members of the ACHA community and provide and receive support.

General Education

United States Organizations

Congenital Heart Anomalies Support, Education and Research (CHASER)

Congenital Heart Defect Awareness Quilt Project

Congenital Heart Information Network

Heart Failure Online

Hypertrophic Cardiomyopathy Association

Kawasaki Disease Foundation

Kids With Heart National Association for Children's Heart Disorders

Learning Disabilities Association: LDA is a nonprofit national organization for people with learning disabilities

National Marfan Foundation

Noonan Syndrome Support Group, Inc.

PH Central: An organization for pulmonary hypertension

Pulmonary Hypertension Association: PHA provides information to people with pulmonary hypertension, primary pulmonary hypertension, families, and physicians.

Sudden Arrhythmia Death Syndromes Foundation (SADS)

Turner's Syndrome Society of the United States: This site provides information on Turner's Syndrome, which may have an associated CHD.

Velo-Cardio-Facial Syndrome Educational Foundation

International Organizations

Adults with Congenital Heart Conditions (ACHC) New Zealand

Association Nationale des Cardiaques Congénitaux (ANCC): French organization for CHD

Canadian Adult Congenital Heart Network (CACHNET)

Canadian Congenital Heart Alliance (CCHA)

Children's Heart Society

Grown Up Congenital Heart (GUCH) - GUCH is an organization for ACHDers in the UK

Heart Defects Society of Windsor and Essex County (Canada)

Jugendliche und Erwachsene mit angeborenem Herzfehler (JEMAH) (German language only): German organization for adolescents and adults with CHD

Nederlandse Hartstichting (Dutch language only): Responsible for the Hartenark, a support group for people with CHD and their families

Nos enfants cardiaques: Belgian organization

Piccoli Cuori - Associazione O.N.L.U.S (Italian language only)

Synja (Sydännuoret ja -aikuiset): This is a Finnish organization for people with CHD. The Synja site is in Finnish.

About CHD

ACC/AHA Guidelines for the Management of Adults with Congenital Heart Disease: Presented December 2008

Care of the Adult With Congenital Heart Disease: Presented at the 32nd Bethesda Conference, Bethesda, Maryland, October 2-3, 2000. J Am Coll Cardiol. 2001;37:1161-98.

American College of Cardiology Health Passport (PDF File)

Web Book: Adults with Congenital Heart Disease

American Heart Association CHD Page (English language version)

American Heart Association CHD Page (Spanish language version)

American Heart Association CHD Statistics

American Heart Association Glossary

AHA: Adults with Congenital Heart Defects

AHA: Anticoagulation

AHA: Insurance, Legal Issues and Advance Directives

CACHNET: Adult Congenital Heart Disease Glossary

Cardiopatias Congenitas: CHD information and resources in Spanish

Consensus Conference General Recommendations