Discussion Forum
A place for registered ACHA members to discuss issues with other members of the ACHA community and provide and receive support.

General Education

United States Organizations

Congenital Heart Anomalies Support, Education and Research (CHASER) 

Congenital Heart Defect Awareness Quilt Project 

Congenital Heart Information Network 

Heart Failure Online 

Hypertrophic Cardiomyopathy Association 

Kawasaki Disease Foundation 

Kids With Heart National Association for Children's Heart Disorders 

Learning Disabilities Association: LDA is a nonprofit national organization for people with learning disabilities 

National Marfan Foundation 

Noonan Syndrome Support Group, Inc. 

PH Central: An organization for pulmonary hypertension 

Pulmonary Hypertension Association: PHA provides information to people with pulmonary hypertension, primary pulmonary hypertension, families, and physicians. 

Sudden Arrhythmia Death Syndromes Foundation (SADS) 

Turner's Syndrome Society of the United States: This site provides information on Turner's Syndrome, which may have an associated CHD. 

Velo-Cardio-Facial Syndrome Educational Foundation 

International Organizations

Adults with Congenital Heart Conditions (ACHC) New Zealand 

Association Nationale des Cardiaques Congénitaux (ANCC): French organization for CHD 

Canadian Adult Congenital Heart Network (CACHNET) 

Canadian Congenital Heart Alliance (CCHA) 

Children's Heart Society 

Grown Up Congenital Heart (GUCH) - GUCH is an organization for ACHDers in the UK

Heart Defects Society of Windsor and Essex County (Canada) 

Jugendliche und Erwachsene mit angeborenem Herzfehler (JEMAH) (German language only): German organization for adolescents and adults with CHD 

Nederlandse Hartstichting (Dutch language only): Responsible for the Hartenark, a support group for people with CHD and their families 

Nos enfants cardiaques: Belgian organization 

Piccoli Cuori - Associazione O.N.L.U.S (Italian language only)

Synja (Sydännuoret ja -aikuiset): This is a Finnish organization for people with CHD. The Synja site is in Finnish. 

About CHD

ACC/AHA Guidelines for the Management of Adults with Congenital Heart Disease: Presented December 2008 

Care of the Adult With Congenital Heart Disease: Presented at the 32nd Bethesda Conference, Bethesda, Maryland, October 2-3, 2000. J Am Coll Cardiol. 2001;37:1161-98. 

American College of Cardiology Health Passport (PDF File) 

Web Book: Adults with Congenital Heart Disease 

American Heart Association CHD Page (English language version) 

American Heart Association CHD Page (Spanish language version) 

American Heart Association CHD Statistics 

American Heart Association Glossary 

AHA: Adults with Congenital Heart Defects 

AHA: Anticoagulation 

AHA: Insurance, Legal Issues and Advance Directives 

CACHNET: Adult Congenital Heart Disease Glossary 

Cardiopatias Congenitas: CHD information and resources in Spanish 

Consensus Conference General Recommendations 

Heart Center Encyclopedia (Cincinnati Children's Hospital Medical Center) 

ISACHD: Glossary for Adult Congenital Heart Disease 

March of Dimes Fact Sheet 

Mayo Clinic Patient/Family Guide to Adult Congenital Heart Disease 

Royal Children's Hospital, Melbourne, Australia: Library of Heart Diagrams 

Cove Point Foundation Congenital Heart Disease