For People with CHD
The following is a list of discussion listservs focusing on CHD and related conditions.
ACHD: Adults with Congenital Heart Defects
Congenital Heart Information Network (CHIN) listserv for adults with Congenital Heart Defects. This list is open only to CHIN members. Please see CHIN's listserv directory for more information.
This list has been set up for families and people with Congenital Heart Defects within the United Kingdom.
This is a discussion group for webmasters of Congenital Heart Defect sites, to share ideas and offer advice about website construction. Your website must be devoted to Congenital Heart Defects to join this list. To join, send a blank message to firstname.lastname@example.org.
This list is for adults with Ebsteins Anomaly to talk about living with Ebsteins, including medical care, the newest research, how our families deal with us, etc.
This list is for Congenital Heart Defect patients living in the Midwest and their families.
This is a support group for adults or parents w/children with Congenitally Corrected Transposition of the Great Arteries (CCTGA).
This list is run by the Noonan Syndrome Support Group for anyone affected by the syndrome. To subscribe, send an e-mail to email@example.com with SUBSCRIBE NOONAN-SYNDROME in the subject and body of the message.
This list is for individuals, families, and researchers/professionals dealing with VCFS/DiGeorge Syndrome (22q11.2 deletion). To subscribe, send an e-mail to firstname.lastname@example.org with SUBSCRIBE VCFS YOURFIRSTNAME YOURLASTNAME in the subject and body of the message.