For People with CHD
The following is a list of discussion listservs focusing on CHD and related conditions.
The resources below are provided for informational purposes only. The presence of a link to or information about an online resource does not represent an endorsement or recommendation by the Adult Congenital Heart Association (ACHA). We make every effort to provide information that is accurate and timely, but make no guarantee in this regard. ACHA assumes no responsibility about the type, amount, and quality of assistance, support or service provided by other agencies or organizations.
We encourage each person to thoroughly review any listed resource to make sure the services provided are appropriate for his/her needs. Each individual should consult with, and rely only on the advice of, his/her ACHD healthcare provider. The linked information is not a substitute for individual advice from an ACHD provider.
This list has been set up for families and people with Congenital Heart Defects within the United Kingdom.
This list is for adults with Ebsteins Anomaly to talk about living with Ebsteins, including medical care, the newest research, how our families deal with us, etc.
This list is for Congenital Heart Defect patients living in the Midwest and their families.
This is a support group for adults or parents w/children with Congenitally Corrected Transposition of the Great Arteries (CCTGA).
This list is for individuals, families, and researchers/professionals dealing with VCFS/DiGeorge Syndrome (22q11.2 deletion). To subscribe, send an e-mail to firstname.lastname@example.org with SUBSCRIBE VCFS YOURFIRSTNAME YOURLASTNAME in the subject and body of the message.