Discussion Forum
A place for registered ACHA members to discuss issues with other members of the ACHA community and provide and receive support.

Heart to Heart Ambassadors

The ACHA Heart to Heart (H2H) Ambassador Program connects ACHA patient and family members with trained peers who provide support, guidance and resources.

While each person’s experience with congenital heart disease (CHD) is unique, many patients find it helpful to talk to someone who has been or is currently in a similar medical situation. ACHA's Heart to Heart Program (H2H) offers members of ACHA and their family the opportunity to connect one-on-one with other CHD patients or family members in a positive, supportive way through the Heart to Heart Ambassador program.

Click here to meet our Ambassadors!

ACHA patient and family members may request to be matched with a Heart to Heart Ambassador. In order to personalize each match, all participants will talk with the program coordinator via telephone to determine what his/her specific needs are. Following that, every attempt will be made to connect the member with a H2H Ambassador who has a similar diagnosis, has undergone a similar medical or surgical procedure, or has had to adjust to similar changes in lifestyle, activities or physical limitations.

If you think you might benefit by being matched with a Heart to Heart Ambassador, please click here for a support request application.

Heart to Heart Ambassadors are trained to provide peer support and peer education to members who request this service and are chosen after submitting an application and three references, one of which must be from a medical professional. Candidates are also interviewed by the program coordinator and program supervisor and are required to participate in a Heart 2 Heart Ambassador Orientation Training Program, as well as annual training. ACHA’s H2H Ambassador program strives to be as diverse as possible within the program structure. Please click here for more specific information.

The Ambassador program trains 10-15 new ACHA patient and family members once a year, to offer peer to peer support and education to our members in the United States. The program is very selective and competitive. We are especially seeking family members who are parents or spouses of patients as well as thriving patients with the following diagnoses:

  • TGA – atrial switch and arterial switch (Senning or Mustard)
  • Aortic stenosis and/or Ross procedure
  • Pulmonary atresia
  • Total anomalous pulmonary venous return (TAPVR)
  • Eisenmenger’s syndrome
  • Transplant patient

Geographic areas of need are also considered in the process as there are many states with no Ambassadors, such as Ohio, Montana, Washington, New Mexico, Nevada, Oklahoma, North Dakota, South Dakota, Alabama, Mississippi, Arkansas, Kentucky and Kansas, to name a few.

If you would like to apply to be a Heart to Heart Ambassador, the application form is available here.

For additional information about either aspect of the Heart to Heart Ambassador Program, please email Lynn Cohen, Volunteer Coordinator, at lcohen@achaheart.org.