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Insurance and Disability Resources
Many adults with congenital heart defects (CHD) will require expensive life-long care and might face obstacles in obtaining insurance and employment. The following resources are provided for your information.
Insurance and SSI
- Americans with Disabilities Act
- Navigating Medicare and Medicaid, 2005: A Resource Guide for People with Disabilities, Their Families, and Their Advocates
- Patient Advocate Foundation
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Charting the Future of Social Security's Disability Programs: The Need for Fundamental Change (PDF file)
Published by the Social Security Advisory Board in January 200 -
Disability Evaluation Under Social Security
See section 4.00 for information on the criteria for adults with cardiovascular issues and section 104 for information on children with cardiovascular issues. - Health Care Financing Administration
- Health Insurance Association of America
- A Consumer's Glossary of Insurance Terms
- Massachusetts Commission Against Discrimination
- National Coalition on Health Care
- Pulmonary Hypertension Association Tracleer Insurance FAQ
- Risk Pools: Where To Turn If You're Medically Uninsurable
- SSI Booklet
- Local/Regional Social Security Administration Offices
- What You Need to Know when You Get SSI
- SSI Appeals Information
- SSA Disability Reviews Information
- US Equal Employment Opportunity Commission