Our objective of the project was to determine if automated acquisition of existing electronic health records (EHR) to a common multicenter database can facilitate ACHD research by enabling analysis of patients across centers. This is the first study to report the application of a tailored clinical-research information system for ACHD. In the first data pull of 2,161 patients, the population sampled was predominantly female, Caucasian/non-Hispanic and nearly two-thirds of patients had moderate or severe congenital heart disease.
Click here to see the abstract presented at the 22nd International Symposium on Adult Congenital Heart Disease (2012).
Click here to see the abstract presented at the 2012 American College of Cardiology Scientific Sessions.
It is because of your patience and support that we are able to provide patient insight in to the development of a tool that empowers ACHD research and information throughout the United States.