CONGENERATE and CONGENERATE
In 2008, a collaboration agreement to develop a national multi-center ACHD research network and national patient registry was signed.
Co-signers of the agreement were the McGill University Adult Unit for Congenital Heart Disease, the Collaborative Research for Effective Diagnostics Group from the University of Sherbrooke, and the Montreal Heart Institute Adult Congenital Heart Centre at the University of Montreal.
The effort was funded by the Canada Foundation for Innovation (CFI), the Canada Research Chair, and the Quebec Provincial Ministry of Health. That same year, the CONGENERATE consortium invited AARCC and ACHA to join the development team, and all three groups defined shared objectives and a plan to create a free, downloadable version of CONGENERATE for widespread use by US ACHD programs.
The resulting IT product from these efforts is now known as the Congenital Evaluation, Reporting, and Tracking Endeavor (CONGENERATE). The defined goals of the CONGENERATE software project are the following:
- Provide an electronic clinical health record to support ACHD clinical care.
- Enable report generation for both administrative and research purposes at each institution.
- Provide a platform for multi-center data sharing.
- Provide patients with an electronic portable health record.
Visit the Project FAQ to learn more about the project and the software or click here for information about CONGENERATE Solutions.