News & Events
Webinars
ACHA is proud to present its 2010 Webinar series. We will be conducting monthly webinars dealing with various, interesting, and timely topics.
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Register Now for the Tuesday, September 28, 7pm-8pm EST: Webinar on IMproving Pediatric and Adult Congenital Treatment (IMPACT), a new, national data registry developed by the American College of Cardiology. Co-hosted with ACC.
About the Webinar
There is little evidence-based research done to improve the care of patients with congenital heart defects (CHD). In response, the American College of Cardiology (ACC) has initiated IMPACT: The IMproving Pediatric and Adult Congenital Treatment (IMPACT) registry. IMPACT will be the first national registry that will collect data on pediatric and adult CHD patients undergoing catheter-based procedures. It will support the development of evidence-based treatment guidelines. These guidelines will contribute to the knowledge base and long-term outcomes associated with CHD. Please join ACHA’s special guest Dr. Gerard Martin, Chair of ACC’s Adult Congenital and Pediatric Cardiology Council, as he provides information on the IMPACT Registry.
About the Speaker
Gerard R. Martin, M.D., F.A.A.P., F.A.C.C.
Senior Vice President, Center for Heart, Lung and Kidney Disease
C. Richard Beyda Professor of Cardiology
Co-Director, Children’s National Heart Institute
Professor of Pediatrics, The George Washington University Medical Center
Dr. Martin is the Senior Vice President of the Center for Heart, Lung and Kidney Disease, and Co-Director of the Children’s National Heart Institute. Dr. Martin has been in practice at Children’s National Medical Center since 1986. He built the Echocardiography Laboratory at Children’s after arriving in Washington and became the Director of the Cardiology Fellowship Training Program in 1993. Dr. Martin was promoted to Professor of Pediatrics with Tenure at the George Washington University School of Medicine in 1995 and became the Chief of Cardiology in 1997. He was named the C. Richard Beyda Professor of Cardiology in 2007.
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Registration information will be sent out prior to each webinar. Be on the look out for other upcoming webinars.
Would you like to see a certain topic covered in a future webinar? Let ACHA know by emailing foswald@achaheart.org
Watch Past Webinars:
Exercise and the ACHD Patient
Tuesday, August 31, 2010, 7-8:00pm ET
Presenter:
Michael McBride, PhD
Director of Exercise Physiology, Children’s Hospital of Philadelphia
This webinar addressed how exercise and physical activity might impact the ACHD patient.
Watch the webinar here.
Summer Lobbying for CHD Advocates
Monday, August 2, 2010, 7-8:00pm ET
Presenter:
Amy Basken, ACHA Advocacy Staffer
This webinar addressed summer lobbying. Advocating for congenital heart defects occurs all year long. The webinar provided information on how to effectively advocate for legislation that benefits the congenital heart community.
Watch the webinar here.
The Adult Fontan Patient
Tuesday, May 25 , 2010, 7-8:00pm ET
Presenter:
Michael E. McConnell, M.D.
Sibley Heart Center – Children’s Healthcare of Atlanta
Associate Professor of Pediatrics
Assistant Professor of Medicine
Emory University School of Medicine
This webinar addressed adults living with Fontan. The challenges of living with Fontan and how to best optimize long-term health were discussed. Long-term complications of the Fontan circulation were also described.
Watch the webinar here.
The Healthcare Reform Act and the Congenital Heart Community
Monday, May 10, 2010, 7-8:30pm ET
Presenters: Brian Altman and Disty Pearson
This webinar addressed areas of the Health Care Reform Act that specifically affect congenital heart patients of all ages as well as CHD healthcare providers. Topics covered included new provisions on coverage extensions for young adults, changes to pre-existing condition rules, and provisions for workforce development.
Watch the webinar here.
Adoption and the ACHD Patient
Wednesday, April 14, 2010, 7-8pm ET
Presenter: Amanda Bone
Outreach Coordinator
MLJ Adoptions
This webinar discussed the adoption process and how you can adopt while having congenital heart disease. International and domestic adoption were discussed.
Watch the webinar here.
How to Have Fun Saturday Night without Waking Up in the ER Sunday Morning
Friday, March 12, 2010, 8-9pm EST
Presenter: Karen Stout, MD
Director, Adult Congenital Heart Disease Program
University of Washington and Seattle Children’s Hospital.
The webinar will be an opportunity to review some of the cardiac concerns that can arise with social gatherings or parties, specifically those activities that may result in cardiac arrhythmias or other acute symptoms. Some tactics for minimizing the likelihood of developing acute symptoms while still having a good time will be reviewed, as well as a discussion of avoiding behaviors that may also have long term consequences (beyond ending up on YouTube).
Watch the webinar here.
Contraception and the ACHD Survivor
Thursday, February 11, 2010, 7-8pmEST
Presenter: Disty Pearson, PA-C
Senior Physcian Assistant, Boston Adult Congenital Heart Service
Have questions about contraception? Disty Pearson has spoken nationally on issues of contraception and how they affect the ACHD community. She will give an overview of the contraceptive challenges and choices for the ACHD survivor.
Starting from the importance of understanding the various obstacles to education of contraception, Disty will review the many issues facing contraceptive choices. Why, for example, the ACHD cardiologist must discuss issues of birth control with their patients when it is not really fall into the category of cardiology (though it may be a matter of the “heart”). What are the different contraceptive options? Why do some pose more risk for the ACHD patient than others? What are the facts about estrogen and who should not use contraceptives containing estrogens? Who can use an IUD safely?
Watch the Webinar here.
H1N1 and the ACHD Patient
Tuesday, November 17, 7 - 8pm
Presenters: Dr. Minisha Patel
Cardiology Fellow at Children's Healthcare of Atlanta
Dr. Tom Shimabukuro
Pandemic Influenza Vaccine Coordinator
About the Webinar
Dr. Patel and Dr. Shimabukuro address the H1N1 flu virus in reference to people with congenital heart disease. Each is able to give their own expert view on H1N1. Covered are the basic "need-to-know" facts and the more complicated issues about H1N1 as it relates to those with CHD. Anyone concerned about H1N1 should watch this presentation, especially those with CHD.
Watch the Webinar here.
The Top Ten Things Every ACHD Patient Should Know
Thursday, August 13, 7 – 8:30 pm
Presenter: Amy Verstappen
ACHA President/CEO
About the Webinar
ACHA President/CEO Amy Verstappen presents the top ten tips she sees as essential for every Congenital Heart Defect (CHD) survivor. Based both on her ACHA leadership experience and her own personal journey negotiating her complex CHD, the websinar covers topics ranging from how to find quality care, incidence data and tips on how to explain what you have. Amy also discusses the latest developments in national Adult CHD advocacy efforts and how every ACHA member can become involved. Although directed primarily to CHD patients, family members and healthcare professionals are also encouraged to view the webinar if interested.
Watch the Webinar here.
Effective Summer Lobbying Webinar
Monday, July 6, 7 – 8 pm
Presenter: Brian Altman
ACHA Board of Directors
ACHA Public Policy Committee Co-Chair
About the Webinar
Recess isn’t just for kids; it’s also for members of Congress. This webinar is designed for those who wish to lead an ACHA Summer Lobby Day delegation. This webinar will provide information on how to effectively advocate for legislation that benefits the congenital heart community. The advocacy efforts described will focus on working with your U.S. Representative and Senators while they are at home, working in your local community.
Watch the Webinar here.