Discussion Forum
A place for registered ACHA members to discuss issues with other members of the ACHA community and provide and receive support.
GO

Webinars

ACHA is proud to present its Webinar series. We will be conducting monthly webinars dealing with various, interesting, and timely topics.

Registration information will be sent out prior to each webinar. Be on the lookout for other upcoming webinars.

Would you like to see a certain topic covered in a future webinar? Let ACHA know by emailing pmiller@achaheart.org.


Upcoming Webinars:

Click here for our 2015 webinar schedule (subject to change).



Women’s Health in Adult Congenital Heart Disease

Monday, May 4, 2015, 7-8 p.m. EDT

Presented by Sue Fernandes, LPD, PA-C, and Anitra Romfh, MD

Click here to register.

About the webinar: Women often think about others before themselves, and for many adult congenital heart disease patients, their heart is at the center of their attention when it comes to health. To ensure a long, healthy life, women with CHD need to make preventive health screenings and positive lifestyle choices a priority. Drs. Sue Fernandes and Anitra Romfh will provide an encouraging and informative discussion on these topics, specifically geared towards women with CHD. You won’t want to miss this empowering webinar! Register today.

Are you a medical professional? For a flyer to display and distribute in your hospital or clinic, click here



Managing Coronary Artery Risk Factors in Adults with CHD

Wednesday, May 20, 2015, 7-8 p.m. EDT

Presented by Ami Bhatt, MD

Click here to register.

About the webinar: As congenital heart disease (CHD) patients age, they are at risk of developing coronary artery disease just like adults without CHD. Do you ever wonder if you’re at risk for a heart attack or stroke? If so, don’t miss this webinar—you will learn about risk factors, setting goals, and ways to think about your personal risk. Learn how blood pressure, weight, cholesterol and physical activity tie into acquired heart disease. Practical tips and the science behind sticking to healthy habits will be covered. Attend this interactive webinar and learn to advocate for yourself. Invite your family members to attend, too, because good heart health is for everyone. Heart health can never start too early. Join us and together let’s see what the benefits might be.


Are you a medical professional? For a flyer to display and distribute in your hospital or clinic, click here

 

 

Watch Past Webinars:

2015:

Scars and Body Image in the Adult with CHD, presented by Jamie Jackson, PhD

What Every CHD Patient Needs To Know about Pregnancy, presented by Richard Krasuski, MD

Advocacy Update 2015, presented by Danielle M. Stephens, ACHA Director of Programs

Tell That Special Someone About Your Special Heart, presented by Ami Bhatt, MD, and Cassandra Bates

Balancing Life with Adult Congenital Heart Disease, presented by Teresa Lyle, DNP, ARNP, CPNP

2014:

Exercise and ACHD: From Testing to Treatment, presented by Alexander (Sasha) Opotowsky, MD, and Keri Shafer, MD

Living with Congenitally Corrected Transposition of the Great Arteries, presented by Yuli Kim, MD

ACHD and Birth Control, presented by Pamela Miner, NP

The Adult with Shone's Complex, presented by Alison Meadows, MD, PhD

Living with Pulmonary Arterial Hypertension in Adult Congenital Heart Disease, presented by Ian Harris, MD

Living Well with Eisenmenger Syndrome, presented by Naser Ammash, MD

Coping Tips for ACHD Spouses and Family Members, presented by Adrienne Kovacs, PhD, PsyC

Living Life Fully Post-Mustard or Senning in the Adult TGA Patient, presented by George Lui, MD

Imaging Techniques in Adult Congenital Cardiology, presented by Ali Zaidi, MD

Valve Replacement Options in Adult Congenital Heart Disease, presented by Gary Webb, MD

Pulmonary Stenosis in the ACHD Patient, presented by Marlon Rosenbaum, MD

ACHA Advocacy Update 2014, presented by Jodie Curtis and Jim Twaddell, Drinker Biddle & Reath

Living with and Managing Heart Failure in the Adult with Congenital Heart Disease, presented by Richard Krasuski, MD

2013:

Understanding and Managing Rhythm Disturbances in Adults with CHD, presented by Alison Meadows, MD, PhD

Understanding Genetic Testing and Hereditary Risk in CHD, presented by Stephanie Ware, MD, PhD, FACMG

Aging with Tetralogy of Fallot, presented by William R. Davidson, Jr., MD

What Adults Living with Ebstein's Anomaly Need to Know, presented by Karen Stout, MD

Insurance Update for the ACHD Patient: Looking Ahead to 2014, presented by Paula Miller, ACHA Member Services Manager

Coping with Life's Challenges and Changes, presented by Adrienne Kovacs, PhD, CPsych

Pulmonary Hypertension in the Adult with Congenital Heart Disease, presented by Jamil Aboulhosn, MD, FACC, FSCAI

ASD and VSD in the Adult with Congenital Heart Disease, presented by Naser Ammash, MD

Taking Charge of Your Medical Records: What Every Adult CHD Patient Should Know, presented by Paula Miller, ACHA Member Services Manager

Thriving with Congenital Heart Disease: 10 Things Every Patient Should Know, presented by Amy Verstappen, ACHA President/CEO

ACHA Advocacy Update 2013, presented by Amy Basken, ACHA Public Policy Manager

Guidelines for the Management of the Adult with Congenital Heart Disease, presented by Ruth Phillippi, ACHA Education and Outreach Manager

Life with Single Ventricle: ACHD Patients Living with a Fontan, presented by Stephen R. Crumb, DNP, AACC

2012:

Traveling with CHD: What the ACHD Patient Needs To Know, presented by Arwa Saidi, MD

It's All in the Pump: Managing and Treating Heart Failure in the ACHD Patient, presented by Karen Stout, MD

Adult Congenital Heart Disease and Dental Issues: What’s up with Preventive Antibiotics?, presented by Disty Pearson, PA-C

Aging with Congenitally Corrected Transposition of the Great Arteries, presented by Carole Warnes, MD

Post Arterial Switch and Rastelli in the Adult Congenital Heart Patient, presented by Joseph D. Kay, MD

What Every CHD Patient Needs to Know About Finding ACHD Care, presented by ACHA Member Services Manager Paula Miller and ACHA Research Manager Ann Gianola

Advocating in August by Visiting your Legislators in Their Home Offices, presented by Amy Basken, ACHA Advocacy Coordinator

Social Security Disability and the Compassionate Allowance Program in the Adult Congenital Heart Community, presented by Jamillah Jackson

Living with Truncus Arteriosus, presented by Michael A. McConnell, MD

Coping with Anxiety and Depression for ACHD Patients, presented by Adrienne Kovacs, PhD

Imaging Techniques in ACHD Care, presented by Craig Broberg, MD

Celebrate and Motivate – Lobby Day 2012, presented by Amy Basken, ACHA Advocacy Coordinator

Valve Replacement in the Adult Congenital Heart Patient, presented by Yuli Kim, MD, Matt Gillespie, MD, and Stephanie Fuller, MD

Eisenmenger Syndrome in the Adult Congenital Heart Patient, presented by Curt J. Daniels, MD, FACC (This webinar was made possible in part by an unrestricted educational grant from Actelion.)

Post Mustard and Senning in the Adult Congenital Heart Patient, presented by Gary D. Webb, MD


2011:

The Adult Congenital Heart Patient Living with Bicuspid Aortic Valve, presented by Jorge Alegria, MD

Managing Holiday Stress, presented by Jamie Jackson, PhD

Patient-Centered Care and Outcomes, presented by Ann Gianola, MA, ACHA Research Manager

Aging with Tetralogy of Fallot, presented by Naser Ammash, MD

Parlez-Vous Medicinese? Talking with Your Doctor When You’re Speaking Different Languages, presented by Ruth Phillippi, MS

Advocating in August: Visiting Your Legislators in Their Home Office, presented by Amy Basken, ACHA Advocacy Coordinator

Women with Congenital Heart Disease: Understanding the Challenges of Pregnancy, presented by Dr. Candice Silversides

Keep the Beat: Identifying and Managing Rhythm Problems, presented by Dr. James Perry  

ACHD, Mental Health, and Quality of Life: What Does the Data Say?, presented by Dr. Philip Moons

A Walk Through Our Website, presented by Terri Schaefer, ACHA Communications Manager  

ACHA Advocacy Update, presented by Amy Basken and Brian Altman

Research 101: Why Should We Care?, presented by Ann Gianola, MA, ACHA Research Manager

Pulmonary Hypertension in the Adult Congenital Heart Patient, presented by Michael Landzberg, MD, FACC, and Disty Pearson, PA-C


2010:

Surviving and Thriving During the Holidays, presented by Paula Goldberg, PA-C  

ACHA 101, presented by Paula Miller and Amy Verstappen

Webinar on IMproving Pediatric and Adult Congenital Treatment (IMPACT), a new, national data registry developed by the American College of Cardiology, presented by Gerard R. Martin, MD, FAAP, FACC

Exercise and the ACHD Patient, presented by Michael McBride, PhD

Summer Lobbying for CHD Advocates, presented by Amy Basken

Pregnancy & Congenital Heart Disease, presented by Carole A. Warnes, MD, FRCP

The Adult Fontan Patient, presented by Michael E. McConnell, MD

The Healthcare Reform Act and the Congenital Heart Community, presented by Brian Altman and Disty Pearson

Adoption and the ACHD Patient, presented by Amanda Bone

How to Have Fun Saturday Night without Waking Up in the ER Sunday Morning, presented by Karen Stout, MD

Contraception and the ACHD Survivor, presented by Disty Pearson, PA-C

H1N1 and the ACHD Patient, presented by Dr. Minisha Patel and Dr. Tom Shimabukuro

The Top Ten Things Every ACHD Patient Should Know, presented by Amy Verstappen 

Effective Summer Lobbying Webinar, presented by Brian Altman