Recent Entries
Changing Cities, Transitioning Care
My Tips for Traveling
Taking Your Scars International
When I Finally Met People With CHD
Learning to Live Life at a Safe Pace
I Am the Only Person I Know with CHD
Catching Zzzs for Those with CHDs
CHD is a Lifelong Disease
My Transplant Brother
“Healthy Enough”
Search

Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

By ACHA on 7/17/2013 3:23 PM

By Shane Tsai, MD

Today there are more adults than children in the United States with congenital heart disease. Just a few decades ago, many infants born with heart defects would not be expected to survive to adulthood. Now the long term survival rate is almost 90 percent. Unfortunately, there are few specialists trained to care for adults with congenital heart disease (ACHD) and many survivors fail to follow up with any cardiovascular specialist.

In my line of work, we like to say that when it relates to congenital heart disease, it’s not what you don’t know. It’s what you don’t know that you don’t know. Confused? There are a lot of myths and misconceptions about ACHD that contribute to the mismanagement of the condition.