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By ACHA on 7/17/2013 3:23 PM

By Shane Tsai, MD

Today there are more adults than children in the United States with congenital heart disease. Just a few decades ago, many infants born with heart defects would not be expected to survive to adulthood. Now the long term survival rate is almost 90 percent. Unfortunately, there are few specialists trained to care for adults with congenital heart disease (ACHD) and many survivors fail to follow up with any cardiovascular specialist.

In my line of work, we like to say that when it relates to congenital heart disease, it’s not what you don’t know. It’s what you don’t know that you don’t know. Confused? There are a lot of myths and misconceptions about ACHD that contribute to the mismanagement of the condition.