Recent Entries
Expiration Date
Wise Owl: My Sacred Space
Taking a Slithery Challenge for CHD
It Starts With Us
Piecing Together My Identity
Never a Burden
An Open Letter to My Pediatric Cardiac Team
My Virtual Health
On Giving Up Control
CHD and the Snow


The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

By ACHA on 5/3/2013 10:44 AM

By Alison Boerner

Camp Odayin provides life-changing camp experiences for children with heart disease. Thanks in part to a volunteer staff, each camp program costs only a $25 registration fee per camper. For most of the campers, Camp Odayin is the only chance they have to participate in a summer camp program, try new things, and be among other kids who understand the challenges they have faced in life. Eight–year-old Aidan didn’t know any other kids living with heart disease before coming to Camp Odayin. Aidan has an atrioventricular septal defect and goes through his daily life aside six healthy brothers. His family had attended Camp Odayin Family Camp, but like many parents, Aidan’s mom and dad hesitated to send their medically fragile child to Residential Camp. Aidan’s mom shared the following after Aidan’s week at summer camp...

By ACHA on 5/2/2012 9:21 AM

By Alison Boerner

Summer days at Camp Odayin are filled with all the typical joys of camp—horseback riding, arts and crafts, wacky costumes, and canoeing. Children meet lifelong friends and find themselves longing to grow up to be like their cool counselors. While this is a common scene at many camps, an observant visitor might realize there’s something special about the campers at Camp Odayin. At meals, caring nurses give these vibrant children numerous colorful, cardiac medications. Down at the lake, waterskiing kids with zipper scars trail behind a boat carrying a cardiologist and an AED.