Recent Entries
Expiration Date
Wise Owl: My Sacred Space
Taking a Slithery Challenge for CHD
It Starts With Us
Piecing Together My Identity
Never a Burden
An Open Letter to My Pediatric Cardiac Team
My Virtual Health
On Giving Up Control
CHD and the Snow


The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

By ACHA on 1/16/2015 11:02 AM

By Jorie Malone

December 30 is a special day for me—it is my heartiversary, and this particular December 30 marked the one-year post-surgery milestone! For heart patients, I know three months, six months, and one-year post-open heart surgery are all big deals, but I think the one-year mark is the most significant. On my heartiversary, I decided to spend the day with reflection and tiem celebrating with loved ones. It was a wonderful day, but the most amazing and encouraging part of all is thinking about what a difference a year can make!

By ACHA on 9/15/2014 2:26 PM

By Jorie Malone

Well, I can now say that I’ve met tons of people with CHD. I even spoke to one person with Ebstein’s, which is my fairly rare anomaly. Just like I hoped for (and blogged about prior to the conference), I was able to connect with people who have similar experiences, learn more about my future living with CHD, and make plans to become more involved in the organization. I’m very thankful I decided to attend the conference this year in Chicago!

By ACHA on 8/15/2014 12:52 PM

By Jorie Malone

I am the only person I know with Ebstein’s anomaly. In fact, I am the only person I know with congenital heart disease. For the longest time, this didn’t bother me. Growing up, I was fortunate to run around like any other kid. Having CHD was something I seldom thought about, and the reminder usually came every couple years when I had a cardiologist appointment.

Today, my circumstances have changed and I am very interested in making connections with people who have CHD. For that reason, I am excited to attend ACHA’s National Conference in Chicago for the first time, and it couldn’t have come to a better place at a more perfect time!