Recent Entries
Never a Burden
An Open Letter to My Pediatric Cardiac Team
My Virtual Health
On Giving Up Control
CHD and the Snow
Adventures, Old Friend
I Never Knew Life Could Be Like This
We Must Use Our Voices
Your Voice When You Don’t Have One
Settling in for a Fight


The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

By ACHA on 2/27/2015 11:01 AM

By Katherine Buchanan

I grew up like a number of congenital heart disease patients, believing I was cured of my heart disease. As a youth, my heart story was a really fun conversation starter in any awkward icebreaker activities that various group orientations threw my way. My senior year of high school, as I prepared for college, I decided to use the story of my cured heart to explain my passion for community service.

Occasionally I would show off my scar in some V-neck top or ask my parents about my baby open heart surgery story, but that was the extent of my CHD identity. My open heart surgery experience served as a fun, upbeat story to share at parties or to set me apart from others, but nothing more.

By ACHA on 12/2/2014 9:04 AM

By Katherine Buchanan

This semester I am fulfilling my dream of living in France. Here I am studying, eating, living and breathing in the beautiful southern region of the country nestled in the small, but still lively, city of Aix-en-Provence. In this beautiful city I have had the unique chance of making new friends, both American and French, who before September 5th knew nothing about me. In this new environment I had the opportunity to choose what role my congenital heart defects play in my life.

Upon my arrival, I started thinking on how to inform my new friends and host family about what I've been through, the good and the bad, and the unrelenting and life-loving spirit that my heart diagnosis and most recent surgery and recovery have given me.

By ACHA on 8/18/2014 3:53 PM

By Katherine Buchanan

Growing up in a household where exposure to the world’s diverse and incredible cultures was a priority, exploring the world has been a consistent dream on my horizon. After trips to Belize and Costa Rica, as well as an extensive number of classes in French and Spanish, my passion for world travel has grown and evolved.

Yet, after my diagnosis with congenital heart disease, worries about how my health would factor into this dream began to creep into my mind. With open heart surgery this past December, I was worried about my summer plans to travel to Europe and future dreams to travel to more remote and physically demanding places in the world. How would it feel to fly in an airplane? What if I had an emergency while abroad? Could my heart keep me from participating fully in the abroad experience?

By ACHA on 5/9/2014 9:24 AM

By Katherine Buchanan

I biked up the steepest hill on campus yesterday morning after leaving my last fitness class of the semester. After my open heart surgery this Christmas I decided to come back to school and take a personal fitness course, hoping to build my strength and endurance to better than it was before the operation.

Our first class was a little over a month and a half after my surgery, and so my abilities were pretty limited. I was slower than my classmates, and while I did feel more energized than I had first semester, I was still sluggish and tired. However, as time distanced me from the surgery, I gained more energy and ability.

By ACHA on 3/13/2014 10:55 AM

By Katherine Buchanan

When I found out I was going to have open heart surgery to repair my leaking mitral valve, I was terrified. Like others in the congenital heart disease community, I grew up thinking I was cured of my original defects—the cleft in my mitral valve and atrial septal defect—and had never heard the term "congenital heart disease" applied to me before.

When the doctors told me that this term was now part of my life and surgery was necessary within the year, I was overcome with fear. Before I knew of the heart problem I lived under the notion that I had the potential to live my life to the fullest—whether that be through my singing, studies or dreams of world travel. I envisioned an exciting future with many adventures ahead, but the news of open heart surgery tore at the foundations of my dreams.