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Fast Recovery
It’s Not Always About the Cure
But I Drink Kale.
CHD and the Law: Hospital Mergers, Part 2
CHD and the Law: Hospital Mergers, Part 1
Trusting Heart
Heart to Heart in Atlanta
Becoming Part of a Crucial Mission
The Reality of the “Red Band Society”
Why Worry? It Will Probably Never Happen
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Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

By ACHA on 10/9/2014 2:17 PM

By Kim Russell

"I wanted to go to the ACHA National Conference, but wasn't able to. This Heart to Heart Where You Live event in Atlanta was a great opportunity to experience it in part on a local level," was a common comment heard after our event this past Saturday. People came from as far away as Arkansas to enjoy time together with fellow CHDers and hear informative speakers who talked about topics such as lifelong care, low-carb diet, and the electricity of the heart.

By ACHA on 8/21/2014 8:30 AM

By Kim Russell

While recently visiting with a social worker at an ACHD clinic, I found out that there are still adult CHDers who have never met anyone else with CHD. I remember that feeling. It wasn’t one that was talked about or that I verbalized, but it was one that was forever in the back of my mind.

“Am I the only one going through this?” “Wouldn’t it be nice to have someone to talk to who understands what this is like?”

By ACHA on 6/17/2014 1:54 PM

By Kim Russell

“She will not be able to bear children,” the doctor said. Of course, this was disappointing, but understandable. “She can’t have children?” my mother asked the doctor.

The doctor shook his head. “No, I said she cannot bear children. She will need to adopt. And there are many children out there who need good families.”

By ACHA on 4/10/2014 9:55 AM

By Kim Russell

Over the past few years, I have had opportunity to visit with many CHD parents across the United States. Listening to their stories, triumphs and challenges has made me realize that their work is much like that of a sculpting artist.

They find out their child has CHD, which is something they know nothing about—they have been given a precious amount of molding clay. So the first thing they do is gather all the tools and information they will need to form this precious child into a strong, independent adult. Then they begin their work of molding, so that each curve and edge is just the right shape.

By ACHA on 2/13/2014 12:53 PM

By Kim Russell

It seems that society has trained us to think of exercise in terms of weight maintenance and toning muscles. But my experience has shown that it does a whole lot more! No energy to exercise, you say? Let me share my story. I found that my thinking was clearer, my pulmonary function was much better and I felt so much better as a person by exercising! Even starting with the smallest, slowest of exercises is still helpful. Here’s how I know!

Two years ago I arrived at my cardiology appointment fatigued, blue, and frustrated. The doctor explained that none of the tests, echos, EKGs or bloodwork showed any serious changes related to my heart. Once again, my cardiologists reviewed the “CHD rules” for dental care, sodium restrictions and exercise.

“You are exercising, right?” she asked.