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Balancing Parenting & Congenital Heart Disease
The First Five Years
My Journey to a Grateful Life
Now What?
Medical Home Sweet Home
Still Cliché’?
To My Village: Thank You
Education is Key in Spreading the Word about CHD
My Own Distinct Voice
A Birthday Reflection on Medical Advancements
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The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

By ACHA on 2/11/2016 9:33 AM

By Anne Gammon

Washing dishes at my sink Monday morning, it seemed hard to fathom that just a week ago I was in Washington, D.C., for the kick off to the 2016 Congenital Heart Legislative Conference. This was my fourth advocacy day, but it had been several years since I was last able to be present. Even more noteworthy, it was the first time I would attend with my daughter with congenital heart disease, Shay, age 15.

By ACHA on 2/3/2014 2:44 PM

By Anne Gammon
ACHA Board of Directors Vice Chair

The deadline to register for this year’s Advocacy Day, which is Feb. 26-27, is in just a few days. If you have never attended, please consider doing so; an empowering and inspirational day awaits.

The first year I attended was in 2009, representing a pediatric organization as our daughter with CHD, Shay, was just 8 years old. For so many years, we had thought of Shay’s life in terms of days and eventually years, but never decades.