Recent Entries
Writing About My CHD Journey
Embracing the Imperfections
“Commit to Doing What You Love.”
A Life-Changing Event
The Aging CHD Patient: The Facts, Part 2
The Aging CHD Patient: The Facts, Part 1
When Your Doctor Retires
On Bravery and Strength
The Best Village Ever
Humor Makes It Better
Search

Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

By ACHA on 2/3/2014 2:44 PM

By Anne Gammon
ACHA Board of Directors Vice Chair

The deadline to register for this year’s Advocacy Day, which is Feb. 26-27, is in just a few days. If you have never attended, please consider doing so; an empowering and inspirational day awaits.

The first year I attended was in 2009, representing a pediatric organization as our daughter with CHD, Shay, was just 8 years old. For so many years, we had thought of Shay’s life in terms of days and eventually years, but never decades.