Recent Entries
My Split ACHD Personality
Living Past the Expiration Date
Testing, Testing
I Am Not Immune To Cancer
Authorizations, Appeals, and Insurance Claims… Oh My!
Help Me Help You
The Terrible, Horrible, No Good, Very Bad Day
How I Melt Stress Away
Fast Recovery
It’s Not Always About the Cure
Search

Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

My "Typical" ACHD Checkup

Dec 18

Posted by: ACHA
12/18/2013 3:10 PM  RssIcon

By Jon Ritchings, Jr.

What to expect at a regular visit? That is something that I've been asked before. It's what causes a lot of anxiousness for many CHDers. For me, the answer is simple—anything.

At the age of 16 is when that trend started. I went in for a regular cardiac visit and ended up in the hospital with atrial flutter. Later on, this trend would continue. After being diagnosed with ventricular tachycardia I went to meet my electrophysiologist for the first time. He suggested that I hang around and meet with a cardiologist and a pediatric cardiologist who does some adult CHD stuff.

After a thorough exam by the two of them they asked, “What are you doing this weekend?” Boom—four days in the hospital. Over the next 10 years this would happen three more times. I would go to an appointment and my magnesium or potassium would be so out of whack that they would insist I go in for a "tune-up.”

That brings us to this December 4th. I went in for a regular check up on my ICD and just like that, they found a broken wire—a broken wire that had left me without a heartbeat for several seconds while I had been asleep two days before. Needless to say, not good! Back into the hospital I go.

Of course, you have to understand how I roll in the medical world. I don't do things the easy way. The wire that had broken was run behind a Teflon ring when my tricuspid valve had been repaired. Furthermore, with the repaired valve, you can't run a wire through it. My guys at one medical center were baffled by what to do, so they put me on an ambulance and sent me to another hospital.

That hospital said there were only two fixes—either crack my chest again and sew a new wire to the outside of the right ventricle or remove my ICD, swap the left and right ventricular leads, and reinsert it. The benefit to the first solution is that the problem is fixed—downside is they have to pretty much do open heart surgery again. The benefit of the second solution is a three-inch incision. The downside is they have no idea if the fix is permanent or if the wire will continue to break down.

I opted for the smaller of the two surgeries and was out the next day. Thankfully, as difficult as my procedures seem to be, I seem to bounce back from things fairly quickly and in a couple of days I was back to my normal life. So if you really want to know what I expect when I go to a regular checkup—I try not to think about it. That way I don't have to contemplate the idea of going into the hospital again.

Jon Ritchings, Jr., is a 40-year-old father who was born with pulmonary atresia and hypoplastic right heart syndrome. Although he has made a career in retail, he prefers to be outdoors kayaking and taking photos. Jon likes to draw inspiration from quotes and one of his current favorites is from Lao Tzu: “I have just three things to teach: simplicity, patience, compassion. These three are your greatest treasures.”

Copyright ©2013 ACHA

Categories:
Location: Blogs Parent Separator ACHA Blog

Your name:
Gravatar Preview
Your email:
(Optional) Email used only to show Gravatar.
Your website:
Title:
Comment:
Security Code
CAPTCHA image
Enter the code shown above in the box below
Add Comment   Cancel