Recent Entries
Remembering the Caregiver’s Well-Being
What's the Patient's Name?
Growing Up with CHD, Into a Precious Piece of Art
A (Not So) Simple Question
Thankful for My First Hospitalization
Thanking Our CHD Doctors
Fussing Over Your Features
Health Above All
The Long and Lonely Miles
The Waiting Game
Search

Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

Sep 1

Posted by: ACHA
9/1/2011 12:23 PM  RssIcon

By Kelly Deeny

I’ve been thinking a lot lately about whether I focus too much on the past. On what I could’ve done differently. What experiences taught me certain lessons? It’s not just the negative memories I focus on, though. I think back fondly when recalling good friends, happy moments and exciting adventures. Truthfully, I think looking to the past can be valuable—in certain situations.

For instance, being that I was only 20 months old at the time of my open heart surgery, the information given to me was done secondhand. Understandably so. My parents have told me different details over the years but there’s this part of me that wants to know what happened to me. Maybe it’s the writer in me who yearns for the story, who wants to know what everyone was feeling, thinking and experiencing during that time—myself included.

Within the past ten years I’ve had this need to know more about my condition. To want to read the details of my hospital records, interview the doctors, nurses and other families who were waiting anxiously just like my parents were. Quite frankly, I just want to know. I know the basics: low birth weight, ventricular septal defect and pneumonia. I remember the routine of annual visits to St. Chris for my check-ups. I recall how full of life and energy Dr. O’Riordian was, always with a smile on her face. The story about how I was petrified of hospitals when I was a toddler. And on and on. For a very long time it was as though I was hearing someone else’s story. I had no memory of the experience. The actions were not mine. As much as I appreciate everything my family and doctors did for me, there remains a need for closure.

Can focusing too much on the past be detrimental to my present or even my future? I believe there can be a balance. If not knowing the circumstances of the past impedes my present, then doesn’t it make sense to look behind so that I can move forward? Or am I stalling my future by keeping my attention focused in the opposite direction? I have this little saying, “People always say never change, but how can you not?” We’ll all change. We’re bound to and we should welcome it. I know I have. There will always be moments of regret, disappointment or unpleasantness but the core of who I am will never change. No matter past, present or future.

A graduate of Temple University's English program, Kelly Deeny recently completed book one in her juvenile fiction series. Using various forms of the creative arts, Kelly seeks to heal the emotional and spiritual scars that remain from her 1979 open heart surgery. While her ventricular septal defect was repaired and no physical limitations remain, she's just recently realized how vital the arts are to her healing process. Visit Kelly’s website by clicking here.

Tags: Kelly Deeny
Categories:
Location: Blogs Parent Separator ACHA Blog

2 comment(s) so far...


Gravatar

Re: Past, Present and Future

Kelly, I think about the same things too. At the request of several people, a friend of mine is helping me to write down many of my experieces. I was born with tetralogy of Fallot with pulmonary atresia. I, too, went to St. Chris and was seen at times by Dr. O'Riordian. In my case I look back at all I went through and how pediatric cardiology grew and know that much of what I went through helped the doctors to learn so they can better help the children today.

By Michael Miller on   9/1/2011 2:14 PM
Gravatar

Re: Past, Present and Future

I couldn't help but weep while I read this. We may have had different CHDs, but it seems we share the same experience. I feel less alone after reading this. I don't know you, but I love you. Thank you!!

By Cheryl Wyatt on   9/6/2011 12:09 PM

Your name:
Gravatar Preview
Your email:
(Optional) Email used only to show Gravatar.
Your website:
Title:
Comment:
Security Code
CAPTCHA image
Enter the code shown above in the box below
Add Comment   Cancel