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Open Heart Surgery Preparation Tips

Jun 21

Posted by: ACHA
6/21/2011 12:06 PM  RssIcon

By Heather Abbott

In June 2008, I had open heart surgery to replace my severely leaking pulmonary valve (PVR). This leak was a direct result of my original Tetralogy of Fallot repair back in 1977 so I’ve always known a valve replacement was possible. My surgery was not an emergency, though it was an inevitable necessity in my life. At the time, I was working full-time in marketing, had two Ivy League degrees, exercised almost daily, and traveled often for both work and pleasure. I had friends and a significant other. Pretty much a normal lifestyle for a young 30-something except that I was born with a heart defect.

Living with a congenital heart defect for me means living a normal lifestyle with the constant fear in back of my mind that I will need a heart procedure done at some point. With medical technology these days, these procedures can be considered somewhat “minor”; however, recovery time is not overnight. So proper preparation is key to a successful recovery. Personally, I took about 7 months to fully prepare for my surgery and 4-6 week recovery and I’d even venture to call the experience my personal Olympics. I experienced minimal post-op pain and was back at work part-time within 6 weeks, New York City commuting and all. So to commemorate this 3rd anniversary of my PVR, here are some basic tips on how I prepared—I hope these are helpful:

  • Compile a list of friends/family in advance who are willing to help. Assign one person to serve as coordinator of post-op visits/meals. Limit to no more than two visitors per day.
  • Purchase/rent/borrow a comfortable recliner! Must have!
  • Have extra pillows handy for when you can sleep in your bed again. This varies by patient but I was in my bed the second night after I got home. For some it’s weeks.
  • If your primary caretaker works, have a back-up available, especially early on when it may be too painful to do simple tasks such as pulling a shirt over your head or opening a water bottle.
  • Join Netflix or suggest to friends that they bring/send you their favorite DVDs. This is also a great time to catch up on or watch a TV series.
  • Meditate Meditate Meditate.
  • Get a massage or two in the week prior to surgery. This will help blood flow more freely and keep you relaxed.
  • If possible, train on a pilates reformer for 1-3 months prior to surgery. I am almost convinced this is why I had minimal sternal pain post-op. A cheaper alternative would be floor pilates classes.
  • Having books and magazines on hand is great but make sure they are light reads.
  • Be prepared for disappointment and pleasant surprises. Some of the folks you think will be the biggest help will let you down and vice versa.
  • Be prepared for frustration and aggravation—hospital bills, insurance issues (especially with heart defects), normal things you cannot do, cabin fever due to exhaustion and not being able to drive for 4-6 weeks. Cabin fever may be less of a factor if you live in a city or small town. I unfortunately did not.
  • Keep a blog, Facebook and/or Twitter page. These are a great alternative to replying to phone calls/emails when you’re exhausted. Facebook/Twitter is great for mini status updates, and the blog for longer updates. I found my blog to be very therapeutic, too.
  • Find a support network. I used the ACHA Discussion Forum religiously and even found a few new friends!

Do you have additional tips to add? Post them below. Thanks!

Heather Abbott brings her enthusiasm for helping find “lost” adult CHD patients and prior fundraising experience to the ACHA Board of Directors, where she is currently Treasurer. She is also the NYC area ACHA Local Leader. Heather received her Bachelor of Science and Master of Business Administration degrees from Cornell University.

Location: Blogs Parent Separator ACHA Blog

13 comment(s) so far...


Re: Open Heart Surgery Preparation Tips

Tet, July '77. Pulmonary replacement August '08.

My tips?

- Don't waste time w/a second opinion. Minutes count. Trust me, I know - 10 mins or 2mm in my case.
- Take every short-term time estimate any medical professional gives you and double it; divide every long-term estimate by 1/3. Seriously. Medicine math is skewed.
- Avoid family squabbles - appoint one person to be in charge of your care. More specifically, not a parent.
- Enjoy every minute of every week of every month of recovery (8-10 weeks for me):
Sleep all day; Have a cat handy for staying up all night.
Keep the internet and a credit card handy. = good therapy.
If it's your birthday, go out shopping, no matter how psychotic beta-blockers have made you. Don't be ashamed to scare people with your schizophrenic rants. Declarations of "Oh! I'm leaking again" help.
Avoid comedies. Laughing hurts like hell. Trust me, good sci-fi feels so much better. However, avoid Jacob's Ladder while on beta-blockers. There's a fine line between the movie and the meds. It will mess you up.
Read books you would never ever read - you probably won't remember them anyway. Or, finish Lord of the Rings.
Eat just about whatever you want. Go lite on the caffeine though.
Shave your own head and bathe irregularly.
Take walks in your hospital gown, with the back open. Show every kid your incision and make up a good story.
Stare out a window at your neighbors for as long as you can stay standing.
Start a scab collection. This is easy.

- Accept people's generosity, sympathy, pity, whatever. Looking pathetic helps. And that glazed-over beta-blocker stare will have them even more concerned.
- After recovery, expect people to ask you if you're back to work... for the next two years.
- For those of you who aren't spiritual gurus, at some point in the whole process, have a good cry. You will - and it's o.k. to - feel sorry for yourself. My position is, for a CHD patient, death is always just a heartbeat away.

By M.K. on   6/21/2011 4:43 PM

Re: Open Heart Surgery Preparation Tips

Great tips Heather.

Just to add to the list. Laugh as much as you can... pre and post surgery. Yes, it might hurt, but its a healing pain. :)

By lorelei on   10/23/2012 11:37 AM

Re: Open Heart Surgery Preparation Tips

Great tips! For me, if you feel something on your heart, you should call a doctor and take a medical check up.

By Gretchen | Arterial Switch Operation in India on   12/30/2013 9:07 AM

Re: Open Heart Surgery Preparation Tips

Am going for surgery in mid Nov to replace the aortic valve. Surgery will be done in Pune, India. I am naturally scared. I have just recovered from dengue fever, so op has been postponed by one week to give me time to recover. I now feel much better, as the dengue attack was not too serious. I am moved by your article - thank you so much!

By Brian Oswald on   10/28/2014 12:56 AM

Re: Open Heart Surgery Preparation Tips

I really like your tip about having an extra or backup caregiver plan. I think that is really smart, especially because you never know what someones schedule will be like. So thanks for posting this! I think these are some great things to be aware of.

By gary stein on   11/11/2014 3:09 PM

Re: Open Heart Surgery Preparation Tips

I agree with your comments M.K. TETs are difficult specifically if preformed pre-1990. For any open heart surgery, I recommend you are mentally prepared for what may come - complications. For the most part, an uncomplicated open heart recovery is 5 days in hospital (in the US) and 6 weeks of rehab. The most important thing a patient can do after their open heart surgery is be active.

Best Regards,

By John Graves on   1/27/2015 3:55 AM

Re: Open Heart Surgery Preparation Tips

I am living in a moderate heart problem of my lifestyle with the fear in back of my mind that I will need a heart procedure done at different zone. Medical technology can be considered somewhat major and could be recover. I got rest for one year to complete prepare for my surgery and by one month recovery.

By Julia on   1/30/2015 2:36 AM

Re: Open Heart Surgery Preparation Tips

It really an awesome tips, thanks for sharing useful to everyone who are on post heart surgery.

By Siddu on   4/29/2015 3:39 AM

Re: Open Heart Surgery Preparation Tips

I am so glad I found this blog...

I was born with congenital heart disease and my first open heart surgery was when I was 4, then when I was 25 years old. Now at 40 years old I will have another...

In 2013, I got so sick that I almost died. I had 7 percent chance of surviving. I have an ICD placed in my right shoulder

Now 2 years after that, this November I am under going another major open heart surgery.

I came upon this blog when I was searching for " how to prepare for Open Heart Surgery" and I have to say, reading these tips has helped me some what.

My question to you is, Have you ever feel like at some point during waiting to have open heart surgery, do you feel angry, sad, and laugh for no apparent reasons? Do you cry at the top of a hat? Do you feel like no one really understands what your going through?( All though they think they do)

I have so many emotions going through my body right now. I don't understand this common feeling? I can laugh at a drop of a hat..

I have been keeping a blog since 2011. When I heard that I was under going open heart surgery this November, I have been blogging so much more now. Writing has keep me sane...I haven been writing for fiction stories...More then ever I am writing keeps me busy and keeps my mind off of what going to happen in November.

By Kristin Marie Leone on   8/15/2015 8:29 PM

Re: Open Heart Surgery Preparation Tips

Yes, I am scheduled for open heart surgery in a month, and I am experiencing all the crazy emotions you are--crying, laughing, and growling. Best wishes to you.

By Georgann Hall on   12/2/2015 4:27 PM

Re: Open Heart Surgery Preparation Tips

I recently had the misfortune of having to under a pretty intense surgical procedure. I had to undergo some reconstructive surgery in order to correct a severe trauma. The whole process leading up to the surgery was traumatic for obvious reasons. I don’t want to go into too much detail but during my surgery, my team used a FAW blanket and it helped so much with my post surgical recovery. Here are some facts about the system

By Catherine Felix on   3/10/2016 2:55 PM

Re: Open Heart Surgery Preparation Tips

Thank for sharing.

By waston on   4/11/2016 8:04 AM

Re: Open Heart Surgery Preparation

I recently came across your blog and i have been reading along. I thought I would leave an appreciation comment. I really enjoyed reading this blog. I will keep
visiting this blog very often. I am an Primus Heart Center

By Ravi Gupta on   5/10/2016 5:40 AM

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