Recent Entries
Walking in My Shoes, Part 1
CHD and the Law: The Heart of a Soldier
Top 5 Reasons to Attend the ACHA Conference
The Disclosing Decision
Not Your “Normal Holiday”
How Facebook Helped Me Get to (Cardiac) Rehab
Not My Average Heart Year
Tips for Cardiac Parents, Part 2
Part 2 and a Connection
Baby Steps
Search

Disclaimer

The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

Inspired

Apr 2

Posted by: ACHA
4/2/2012 12:12 PM  RssIcon

By Alissa Butterfass

This past week, I was inspired by someone I don’t know, never met, and never even heard of until Wednesday. A friend of mine posted on Facebook a link to an article about a friend of hers who worked with a well-known beauty company to launch a limited edition nail polish color in memory of her friend Jennifer Goodman Linn, who passed away from cancer last summer. I saw the Facebook post, clicked the link to Jennifer’s blog and began to read the story. And, I couldn’t stop reading.

For over six years Jennifer battled against cancer—and I mean battled, waged war, did everything she could to help herself and others survive. In 2007 Jennifer and her husband started an annual fundraising event that has since gone national and has raised millions to fund research on the so-called “orphan cancers” that strike fewer people and thus are less likely to be researched. We are talking about a powerhouse woman. In an e-mail to me, her friend Alicia called Jennifer “superhumanly awesome.”

What struck me was story after story about Jennifer’s positive attitude, love of life and indomitable spirit—even as she underwent treatment after treatment after treatment. In fact, Jennifer’s philosophy of life was to “live fearless” and her blog/website is www.youfearless.com. I read post after post about Jennifer’s smile, her way of connecting with people and most especially, her love of dancing—with a link to a video of her “Happy to be 40” dance that especially hit home with me as my 40th approaches in just two months. (Note: Jennifer started the blog a few years ago and since her death it has been maintained and updated by one of her childhood friends.)

What a legacy this woman Jennifer Goodman Linn leaves behind. Beyond the many people she personally met and befriended, her efforts will impact, and potentially help heal, so many who so need it.

It’s easy to complain that we’re tired, that we’re overworked and overscheduled. We have too much on our plates and not enough time to do it all. Well, it’s time for me to stop the complaints and excuses. I aspire to live a life like Jennifer. A life remembered for a positive attitude and shining smile even in the toughest of circumstances. A life remembered for reaching out to help others. A life where I make a difference not just to my immediate family, but also to my friends, my community and beyond.

I’m not there yet—not by a long shot. But, I hope I can start moving in that direction. Whether it's writing for ACHA and connecting with my fellow CHD survivors, leading my local young women’s chapter of Hadassah (a Jewish women’s charitable organization), volunteering at my children’s school, or donating money to support my favorite causes, giving of my time, my money, and my experience to help others is so gratifying and personally satisfying. And, after reading about Jennifer—her life and her life’s work—I am thinking about how I can do that on a bigger and more impactful scale. I haven’t figured it out yet. It may take a while and it may never reach the level of influence that Jennifer did, but it’s certainly something on my mind and a personal goal to strive for.

Alissa Butterfass was born with transposition of the great vessel, which was corrected with a Mustard procedure at age 2. In addition to being a mom, wife, daughter, sister, friend, wannabe author and chocoholic, she works part time as a senior marketing manager at a Fortune 500 company and volunteers as the Co-President of her local chapter of a nonprofit organization.

Categories:
Location: Blogs Parent Separator ACHA Blog

2 comment(s) so far...


Gravatar

Re: Inspired

Alissa, I miss my daughter way beyond words could express, but it sure warms my heart to read pieces like yours. Thank you so much taking the time in your very busy day to validate Jen's life and all the good she accomplished.She has had a profound impact on thousands of people and her legacy, Cycle for Survival, will continue. I am sad, but so proud!
Happy Holiday from another chocolate lover!


By Sandy Goodman on   4/2/2012 2:48 PM
Gravatar

Re: Inspired

Thank you Sandy. It means so much to me that you read this post. I am so sorry that I did not have the chance to meet Jennifer in person - it sounds like she was incredible. Sending warm thoughts to you and your family. -Alissa

By Alissa on   4/2/2012 8:06 PM

Your name:
Gravatar Preview
Your email:
(Optional) Email used only to show Gravatar.
Your website:
Title:
Comment:
Security Code
CAPTCHA image
Enter the code shown above in the box below
Add Comment   Cancel