Recent Entries
Summer Vacation: Tips for Traveling with CHD
How Do You Start Your Morning?
Balancing Parenting & Congenital Heart Disease
The First Five Years
My Journey to a Grateful Life
Now What?
Medical Home Sweet Home
Still Cliché’?
To My Village: Thank You
Education is Key in Spreading the Word about CHD


The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

Author: Created: 5/17/2011 1:10 PM RssIcon
Our ACHA bloggers will post about many topics relevant to the CHD community.
By ACHA on 1/29/2014 1:49 PM

By Kim Edgren

I had another post all set to go today but after watching the State of the Union address last night I changed my mind. I promise—no politics! It made me think about resilience, community and commitments made, which led me to think about ACHA…. Well, OK, maybe that is my short attention span! But seriously, the months ahead are full of opportunities for our CHD community to make commitments, show our resilience and be heard. How, you ask?

By ACHA on 1/27/2014 11:35 AM

By Michael Pernick

This blog series features stories involving congenital heart disease and the law. The blog posts may discuss contemporary or historical court decisions, laws or regulations, or other legal issues that relate to CHD. These posts are purely for entertainment and educational purposes and are not legal advice. Any opinions expressed in this series of posts are solely those of the author and do not represent the Adult Congenital Heart Association.

I’m writing today about one of the first times Congress discussed the importance of providing support to individuals with congenital heart disease. But before I get into that, some background…

By ACHA on 1/23/2014 1:15 PM

By Becca Atherton

Back in December I was medivaced from Phoenix to California because I was experiencing atrial flutter (AFL). The doctors were able to pace me out of it and I got to go home right in time for Christmas. But just two weeks later, I was back in AFL and had to fly up again. They were, once more, able to pace me out of it, and now there is a setting on my device that if I go back into AFL, my pacemaker/ICD will make a sound letting us know. On top of that, I was also started on a few new medications, one of which is Coumadin.

By ACHA on 1/21/2014 2:24 PM

By Steve Graham

Good dental care and good dental hygiene is essential for everyone. This is especially true for adults with CHD. As a child, I can remember my parents stressing that I always take my “medicine” before any dental appointment. When I left for college, they still pestered me about the importance of my pre-meds. It wasn’t until later into adulthood, that I realized how important taking my “medicine” was before any appointment.

By ACHA on 1/17/2014 1:37 PM

By Amber West

I have been going through some things recently with my congenital heart condition. Nothing bad—I am actually healthy. It’s just that people around me have been viewing me as weak, which I hate more than anything.

I know I have limits and I know I can’t do as much as everyone else, but I am not weak or a baby. Ever since I was young, I have had people treat me differently for having a heart condition—I wasn’t “cool” enough because of my CHD. My family and very close friends never did, though. 

By ACHA on 1/15/2014 3:37 PM

By Paul Willgoss

This is a Facebook status I see a fair amount... and I’m never sure about it.

I understand how people need to hate CHD, need to feel the anger that only hate can bring to put CHD in its place. And that, I think, is the key, that CHD is almost a person—it's visceral, it does things to people, and it can be hated.

Yes, there are times I hate the way CHD impacts my friends, cutting their health and lives short. Yes, I scream at the night sky in rage as another friend dies.

But do I hate CHD?

By ACHA on 1/13/2014 9:03 AM

By Jennifer Gooden

As adult congenital heart patients we often learn early to “listen to our bodies.” Not listening can have dire consequences. We learn when our bodies are giving us the yellow light to slow down and take things easy. For me it’s more of the red light – stop, something is wrong – that I have a hard time with. What can I say? I am a bit hard-headed!

By ACHA on 1/10/2014 9:34 AM

By Ellen Greenberg

In 2013 I took many chances; the best was the one of a lifetime. Not everyone was behind me on this decision at this time in my life—I was fighting a horrible cold and had just started a new job, and so my voice was pretty hoarse. However, with my go-getter attitude I thought if I don’t take this chance I would be doing ACHA and myself a disservice. I practiced, rehearsed, changed my song two weeks before, figured out the 90 seconds allotted, and with help, picked out my outfit the night before.

By ACHA on 1/8/2014 10:59 AM

By Nick Goucher

As the two-year anniversary of my heart surgery approaches later this month I find myself currently stressing out over things that would have seemed so minimal two years ago this time.

I was down in Florida for most of December taking a vacation and mixing in some business at the same time by attending a career conference and scheduling a job interview. While I was there I got my first-ever traffic ticket for speeding in a school zone. I was completely unaware that I was in a school zone and there was nothing I could do, looking back at the situation.

By ACHA on 1/2/2014 3:25 PM

By Yvonne Hall

Five years ago, it seemed impossible that my daughter would be healthy, happy and partaking in family Christmas festivities. December had become the month to dread and with good reason.

As each Christmas season approached, Lorie unexpectedly suffered health setbacks and for two seasons her condition was nearly fatal. The approach of December then became filled with apprehension and fear that Christmas would again be marred by health concerns.