Recent Entries
Summer Vacation: Tips for Traveling with CHD
How Do You Start Your Morning?
Balancing Parenting & Congenital Heart Disease
The First Five Years
My Journey to a Grateful Life
Now What?
Medical Home Sweet Home
Still Cliché’?
To My Village: Thank You
Education is Key in Spreading the Word about CHD


The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

Author: Created: 5/17/2011 1:10 PM RssIcon
Our ACHA bloggers will post about many topics relevant to the CHD community.
By ACHA on 1/30/2012 12:34 PM

By Becca Atherton

This past week, I went to a local elementary school to talk with third and fourth graders about my heart condition, bullying and how you can’t look at a person and think you know what they are like. I explained how with my heart defect, I look normal. Looking at me, people have no idea that I am sick. So when I walk slow or take the elevator instead of the stairs, they look at me weird or make comments. I also talked about when I was younger; even when I was in high school people would still make fun of me. The kids asked questions about my illness, how I coped with the bullying and then I got a question that I had never gotten before.

By ACHA on 1/25/2012 3:09 PM

By Ken Woodhouse

I don’t know about you, but 2012 is off to a pretty fantastic start for me! After a challenging few months at the end of 2011, I finished the year with a long, but quite successful, stent procedure (December 29). I then rang in the new year with an electrophysiology study (January 9) that came back negative, meaning that I’m not a likely candidate for getting an ICD!

By ACHA on 1/24/2012 3:34 PM

By Clare Almand

I just did something huge.

I moved from my parents’ house in our suburban town of Arlington, Virginia, to my friend’s couch in New York City.

By ACHA on 1/20/2012 2:44 PM

By Kelly Deeny

I follow my heart most of the time. It doesn’t always serve me well, but I still let it guide me where it chooses. I trust it to know what’s best—to understand my limitations, both physically and spiritually. After all, it’s been through a great deal. It was in need of repair from the start, yet it held on. It kept beating. Kept me alive. It knew struggle and so have I. We’re a pair. It takes care of me. And yet...

I don’t always return the favor.

By ACHA on 1/19/2012 2:54 PM

By Kim Edgren

I consider myself a hospital snob. It is easy for me because I live so close to Boston and some of the top hospitals for anything I have ever needed. When my friends ask my opinion about healthcare, I always steer them in that direction, even with many other hospital options much closer.

By ACHA on 1/18/2012 10:42 AM

By Paul Willgoss

This is an unapologetic endurance athlete-type blog, which is why I’m starting off recalling an HR conference in deepest Yorkshire.

I had the pleasure of seeing a business guru do his guru-thing to an audience of suited women and men. Although most of what the presenter, Jim Collins, was saying went the way of much guru-isms, he did come out with something that made me think.

The BHAG: Big Hairy Audacious Goal

By ACHA on 1/12/2012 3:01 PM

By Alissa Butterfass

On my first date with my husband, he took me to a restaurant on the Upper West Side of New York, we discussed his upcoming vacation, and he told me he loved to cook homemade pizzas and apple pie (both of which he wouldn’t cook for me for nearly a year, by the way).

But this post isn’t about my first date with my husband. It’s about the last first date I had before I met my husband.

By ACHA on 1/10/2012 2:14 PM

By Stephie Goldfish

“Welcome to adulthood,” Dr. Heydarian’s nurse, who is also his wife, said, as I undressed for my first echocardiogram at age 17 in January 1983. Sometimes those gowns are useless when having this procedure, and I’m very glad a woman was with me during the echo. This is one of many CHD experiences I had going into adult health care, and we’re fortunate enough to have a team, such as ACHA, that understands this transition from adolescence to adulthood.

By ACHA on 1/6/2012 1:39 PM

By Jennifer Rice

I can’t believe that it is 2012 already! It seems like just yesterday it was Thanksgiving and in a blink of an eye it is already the New Year. For me, this means my birthday is super close by—it’s today! After my birthday, I know the holiday season is officially over and that “real life” will commence.

By ACHA on 1/4/2012 3:13 PM

By Lorelei Hill

Last month, I went for my first ever day-patient iron transfusion. Yippee, another new hospital experience! Like the old cardiac pro that I am, I arrived on the second floor with minutes to spare. With ID in hand, I approached the reception desk...

”Out this door and down the hall," I was instructed. Apparently this ‘old pro’ was in the wrong place.