Recent Entries
CHD During a Job Interview: To Mention or Not to Mention?
Moderation … Yeah, That’s a Thing
A Thankfulness Theme
The Fearless Factor
A Time to be Grateful
Sharing My CHD Story in France
My Split ACHD Personality
Living Past the Expiration Date
Testing, Testing
I Am Not Immune To Cancer


The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

Author: Created: 5/17/2011 1:10 PM RssIcon
Our ACHA bloggers will post about many topics relevant to the CHD community.
By ACHA on 12/18/2014 11:50 AM

By Jon Ritchings, Jr.

Yesterday I had my first interview in a couple of years. It was for an internship in a medical office. One of the things I thought about was, do I mention my congenital heart disease?

When I was writing my resume for this position I struggled with adding things like my Facebook groups, social media experience, this blog, and my experience as a patient—to show I have had some contact with the medical community. If I did put this stuff on the resume, though, I would be saying, “Hey, guys! I have a physical defect that will cause lifelong issues.”

By ACHA on 12/16/2014 2:38 PM

By Meghann Ackerman

It’s recently come to my attention that Victor and I have widely different concepts of what “more healthy” means.

Victor’s cholesterol has been creeping up and his doctor had him start a new medication to bring it down. Given his own CHD and his family’s heart health history, this is a very good thing. At my last doctor’s appointment I was told I could stand to up my good cholesterol levels a little. So, right from the start, we have different points of view.

By ACHA on 12/11/2014 2:26 PM

By Becca Atherton

I hope everyone had a wonderful Thanksgiving that was spent with family, friends and laughter! When considering what I am thankful for, I thought about all the amazing things I have in my life—and I noticed a recurring theme. All of these amazing things in my life are because of my health. It's odd to think that something that is so terrible has still managed to bring so much joy into my life.

By ACHA on 12/9/2014 12:01 PM

By Ellen Greenberg

As I sat down to write about limitations I caught an episode of Fear Factor. I have never watched this show in its entirety; however, I found myself both engrossed and grossed out by it. This past year I began to realize all of my limitations and how to work within them.

I am always the girl with the can-do attitude. I often strive for things that seem impossible to many. For instance, I recently received a master’s degree. I auditioned for America’s Got Talent last year, because it was in Manhattan—close enough to where I live and I owed it to myself, for the sheer experience of the thrill, nothing more.

By ACHA on 12/3/2014 10:19 AM

By Yvonne Hall

The Christmas season has always been a time of celebration and excitement in our household and it brings me joy to see this love of the season carry on in my children as they create their own traditions and memories with their families. No matter how busy December becomes, my rituals must include time to gratefully reflect on all the blessings life has given me.

Inevitably memories of distressing and worrisome holiday seasons resurface as well, which only serves to remind me how truly fortunate I am. Regrettably, over the past few years December didn’t turn out according to expectations and it began to feel as though our family Decembers were jinxed—rather than the joyful times we were accustomed to.

By ACHA on 12/2/2014 9:04 AM

By Katherine Buchanan

This semester I am fulfilling my dream of living in France. Here I am studying, eating, living and breathing in the beautiful southern region of the country nestled in the small, but still lively, city of Aix-en-Provence. In this beautiful city I have had the unique chance of making new friends, both American and French, who before September 5th knew nothing about me. In this new environment I had the opportunity to choose what role my congenital heart defects play in my life.

Upon my arrival, I started thinking on how to inform my new friends and host family about what I've been through, the good and the bad, and the unrelenting and life-loving spirit that my heart diagnosis and most recent surgery and recovery have given me.

By ACHA on 11/24/2014 8:22 AM

By Jennifer Gooden

In September I was able to attend the ACHA 7th National Conference. I got lucky that my work wife and fellow Fontan, Tracey, was able to attend as well. There were three different “tracks” at the conference. One track was geared more towards patients, while the other two were more for professionals: nurses, doctors, surgeons, medical students… you get the idea. So what were two pediatric cardiac ICU nurses/single ventricle patients to do? We were struck with a very important question: patient or professional?

By ACHA on 11/18/2014 10:47 AM

By Kim Edgren

As we approach another holiday season, it is hard to believe yet another year has passed—another year older as a CHD patient!

I recently read an article in Cardiology Today posted by ACHA, “Adults with congenital heart disease present challenges, rewards for cardiologists.” It is an excellent article and worth the read.

By ACHA on 11/12/2014 9:39 AM

By Paul Willgoss

"You’re looking forward to that test..."

An immortal line from my manager, as I sent her the dates of the 24-hour ECG and the cardiac MRI, and bemoaned the lack of a date for my exercise test.

My cardiologist is doing what they all should do and is checking a marginal difference in my pulmonary valve and ventricles from last year. The changes are being set against the fact that I’ve run my two fastest marathons this year, and knocked a chunk of my course time for my favourite ultra.

By ACHA on 11/10/2014 1:34 PM

By Alissa Butterfass

Back in 2011 I wrote a post for the ACHA Blog around Thanksgiving time. You can read it here, but the gist was that everyone has something; no one’s life is perfect. Sometimes it is easy to know what problem or issue someone is dealing with. Other times on the surface it might look like someone is living the perfect life—but the truth is that person is dealing with something too, you just might not know it. And my lot in life, my issue to deal with, was that I was born with a congenital heart defect.