Recent Entries
A Heartwarming Happy Birthday
Looking for the Little Signs
Enjoy New ACHA Videos!
The Hurry Up and Wait Room
What’s Important to Patients?
Riding the OHS Recovery Rollercoaster
My CHD Rollercoaster
On the Other Side of the Bed
Heart Sisters on a Journey
It’s a Family Affair


The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

Author: Created: 5/17/2011 1:10 PM RssIcon
Our ACHA bloggers will post about many topics relevant to the CHD community.
By ACHA on 9/3/2015 2:17 PM

By Jean Psolka-Zalek

Hello! I am writing this post today as the only sibling of Bill Psolka, one of the original ACHA Ambassadors, who are also known as Ambassador Pioneers. Bill was born with tricuspid atresia in September 1965. Already three, I thought I had being an only child all figured out, until our mom and dad came home with a lifelike doll just for me—or so I thought!

By ACHA on 8/31/2015 2:37 PM

By Kim Edgren

I have blogged in the past about waiting for the other shoe to drop from a cardiac standpoint. It is inevitable that there will be another intervention in my future. Of course the hope is that it is of the less invasive kind and not open heart surgery, but there are no guarantees.

I am always looking for some little sign that my heart status is changing and because of the subtle changes that led up to my heart failure the last time, I wish I knew what little memos my body may be trying to send me. And, I am hoping I didn’t get one last March.

By ACHA on 8/27/2015 10:55 AM

By Terri Schaefer
ACHA Communications Manager

Have you seen our two new ACHA videos we recently shared via social media and our monthly e-newsletter?

By ACHA on 8/20/2015 1:31 PM

By Yvonne Hall

”Well, here I am again,” I sighed. It was 7 a.m. and the hospital waiting room was still empty. My husband was undergoing day surgery, scheduled for 8 a.m. and this was my sixth visit here in four years. Settling in for a minimum six-hour wait, I remind myself once more to be grateful to be on the waiting room side of the situation.

By ACHA on 8/18/2015 12:24 PM

By Paula Miller
ACHA Member Outreach Manager

Over the past year, as a representative of ACHA, I have had the privilege of sitting on the Patient Engagement Council (PEC) of the Patient Outcomes Research to Advance Learning (PORTAL) clinical data research network, which is funded by the Patient-Centered Outcomes Research Institute (PCORI). There are 11 research centers in this network that is made up of four health delivery systems: Kaiser Permanente, Group Health Cooperative, Health Partners and Denver Health.

By ACHA on 8/12/2015 4:06 PM

By Deb Flaherty-Kizer

I feel like I am on a county fair ride rather than being home recuperating. I’ve had ups, downs, sideways turns, and spins. So, what have I learned during my recovery so far?

Expect the unexpected. I was all set to leave my rehabilitation facility when a 6-hour nosebleed kept me there another week. I’ve learned to realize that these things happen, and that I will get through them.

By ACHA on 8/6/2015 2:27 PM

By Katherine Buchanan

After recovering from open heart surgery a little over a year and a half ago, I was on a rollercoaster of emotions. I flew from being terrified of complications to rejoicing for the miracle of my life to feeling deep anxiety again with very little buffer in between the emotional turns. Though my surgeon ended my last appointment announcing my freedom to pursue whatever dreams I wished, the traumatizing experience of surgery, the realization of my heart’s vitality and the appreciation for the beauty of life kept me in a whirlwind state.

By ACHA on 8/3/2015 11:56 AM

By Jon Ritchings, Jr.

I’ve recently started dating a young lady who also has a congenital heart condition. Two weekends ago we were supposed to get together for a date; however, our plans were disrupted by CHD. For once it’s not me and my wonky heart that were acting up, instead it was her wonky heart.

By ACHA on 7/30/2015 12:29 PM

By Stephanie Hodgson

Upon returning from a three-week journey west with my twin sister, we both were on a spiritual high. We attended a retreat in central Oregon where we slept in tipis and sat around a fire each night—the most camping I had ever done since junior high school. We had gifted ourselves this journey because we were going to be celebrating our 50th birthday on the last day of the retreat. It was the most spiritual connection I have had in such a long time.

By ACHA on 7/27/2015 11:20 AM

By Damion Martin

Today is my wife’s birthday.

I had the benefit of a 30-year head start on my wife with regard to CHD. Up until she met me, she didn’t have to worry about ejection fractions, echocardiograms, EKGs, beta blockers or things of that nature. She had other things to worry about like her career, a mortgage, a dog, and all the other things most people have going on in life. Up until we started dating I had my parents and brother as a loving and supportive team (who remain loving and supportive to this day). And yet, she willingly loaded the burdens of my health up onto her shoulders without a single complaint.