Recent Entries
The Difference Between Running and Walking
Living Fearlessly
The Beauty of Scars
CHD Lessons Learned on Machu Picchu
Knowing What to Know
Fitness and CHD
A Heartwarming Happy Birthday
Looking for the Little Signs
Enjoy New ACHA Videos!


The opinions expressed by ACHA bloggers and those providing comments on the ACHA Blog are theirs alone, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied by the ACHA bloggers.

The contents of this blog are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

Author: Created: 5/17/2011 1:10 PM RssIcon
Our ACHA bloggers will post about many topics relevant to the CHD community.
By ACHA on 9/29/2015 9:52 AM

By Kelly Deeny

I used to respond to "Tell us something unique about yourself" with "Well, I had open heart surgery before the age of two." Now my response is, "I am a writer!"

It's been suggested that I tend to give too much power to my ailments and not enough to my positive attributes. Do I fall back on an event that left me powerless instead of one that made me feel strong and alive? Sometimes, yes, I do.

By ACHA on 9/25/2015 10:43 AM

By Paul Willgoss

I’ve been injured.

I only wish it was a normal running injury—a sprain, a pull or a twist. Unfortunately, it was a knock-down smash to my knee.

Yes, it hurt more than it looks, and it hurts more when I try and run. Which is a bit awkward when you’re trying to train for a marathon.

By ACHA on 9/23/2015 9:21 AM

By Kathleen Hutchinson

I don’t know about you, but lately I see all over the internet a greater prominence of inspirational cliché’s and feature articles related to overcoming our fears. “Everything you want is on the other side of fear” or “We are held back by fear not limitations” or my personal favorite, “Life begins at the end of your comfort zone.”

By ACHA on 9/18/2015 12:24 PM

By Kelly DiMaggio

I loved writing this post, as it encompasses so much: love, friendship, and the beauty surrounding the "imperfect" body of those scarred CHD warriors. I often struggle to put my thoughts into words, as words don’t do justice to the vast spectrum of all that comes with being an ACHD patient. With that in mind I decided to focus my latest piece around a styled bridal shoot that I was lucky enough to model for. After all, a picture's worth a thousand words… right?!

By ACHA on 9/16/2015 3:12 PM

By Jorie Malone

This summer, I went on a trip of a lifetime. I had been wanting to go to South America, specifically to visit Machu Picchu, for the past several years. The timing had never been quite right, though. Minor life events, like family weddings or moving apartments, and major life events, like recovering from heart surgery or getting a new job, seemed to get in the way. I was also waiting for schedules to line up with friends or family because I didn’t want to go alone.

By ACHA on 9/14/2015 2:56 PM

By Christy Sillman

One of the hardest things about being an adult with congenital heart disease is knowing what to watch for and when to call the doctor. For the longest time I hesitated before calling my doctor for something I was concerned about. I didn’t want to bother him, I didn’t want to seem annoying, and I wasn’t sure if my issue was worthy of a call. Now, as the person who receives the calls, I’m here to tell you the importance of calling.

By ACHA on 9/9/2015 1:34 PM

By Terran Lamp

Fitness has always been a huge part of my life! Not necessarily the easiest part, but I've made it fun and worth the challenge. Living with congenital heart disease, I can remember back to elementary school gym glass where I couldn't run as much as the other kids. I was always the last one to complete my laps—and what made it worse is no one really knew why.

By ACHA on 9/3/2015 2:17 PM

By Jean Psolka-Zalek

Hello! I am writing this post today as the only sibling of Bill Psolka, one of the original ACHA Ambassadors, who are also known as Ambassador Pioneers. Bill was born with tricuspid atresia in September 1965. Already three, I thought I had being an only child all figured out, until our mom and dad came home with a lifelike doll just for me—or so I thought!

By ACHA on 8/31/2015 2:37 PM

By Kim Edgren

I have blogged in the past about waiting for the other shoe to drop from a cardiac standpoint. It is inevitable that there will be another intervention in my future. Of course the hope is that it is of the less invasive kind and not open heart surgery, but there are no guarantees.

I am always looking for some little sign that my heart status is changing and because of the subtle changes that led up to my heart failure the last time, I wish I knew what little memos my body may be trying to send me. And, I am hoping I didn’t get one last March.

By ACHA on 8/27/2015 10:55 AM

By Terri Schaefer
ACHA Communications Manager

Have you seen our two new ACHA videos we recently shared via social media and our monthly e-newsletter?