Growing Up with CHD

This survey is now CLOSED. Thank you to everyone who participated. If you are chosen for the presentation, you will be contacted further via email.

Thank you for your interest in our Growing Up with CHD survey! We are soliciting member input for use in developing ACHA's official presentation when addressing parent groups. We appreciate you offering your advice and photos!

Please provide your biographical info and answer the three questions below. Be sure to read the directions on the bottom before you submit your information, as you will also need to provide us with two photos via email.

If you are chosen for the presentation, you will be contacted further via email.












What advice would you give parents of children with congenital heart disease to help their children thrive?



What specific things did your parents do that you feel were especially helpful in managing your congenital heart defect?



What specific things did your parents do that you feel were especially unhelpful in managing your congenital heart defect?


Thank you for answering our questions. You are almost done with our survey!

Important: As a final step, we now need two photos of you—one of you as a child and one of you as an adult. After you hit submit below, please email your photos to photo@achaheart.org.

Thank you again for your contribution! If you are chosen to be part of the presentation, you will be contacted via email.