Discussion Forum
A place for registered ACHA members to discuss issues with other members of the ACHA community and provide and receive support.

Advocacy Day 2014

Learn more about this year's event and how you can participate below!

February 26-27, 2014 at The Dupont Circle Hotel in Washington, D.C.

 Registration has closed, but we hope you will still participate from home on February 27. Details are below!

CHD advocates will be traveling to Washington, D.C., to visit their lawmakers on February 27, 2014, for Congenital Heart Advocacy Day. Advocates (including those with congenital heart disease, their families and friends, and the medical community) will gather February 26 for a day of training and fellowship with a reception that evening. Participants will be asking their Members of Congress to support NIH research funding and CDC surveillance efforts. In addition, they will be recruiting Members for the Congressional Congenital Heart Caucus.

Attendees, please click here for the Ready, Set, Advocate packet. This document provides valuable information to help you plan and prepare for your visit to Washington, D.C.

Not attending Advocacy Day in person but still want to reach out to your lawmakers from home?

We hope you will join us! Follow the steps below to ask for three simple things on February 27, 2014:

  • Research
  • Data Collection
  • Caucus Participation

Join with your fellow advocates and call your lawmakers on February 27.

Action is simple—only three easy steps

  1. Visit House.gov and Senate.gov to find your legislator’s contact information.
  2. Call their Washington office and say:

    “Hello, my name is _________. I/my child/my patients have congenital heart defects, the most common birth defect. We need more NIH funding for research, more CDC funding for data collection, and we need YOU to join the Congressional Congenital Heart Caucus. For more information, please email me at ______________.”

    If you would like to add more detail:

    • Congenital heart defects (CHD) are the most common birth defects.
    • There are more than 2 million people living with congenital heart disease.
    • CHD is a leading cause of death for infants, and remains a cause of premature death throughout the lifespan.
    • The NIH is the largest funder of congenital heart disease research.
    • The CDC’s National Center on Birth Defects and Developmental Disabilities has made congenital heart disease a public health priority.
    • Talk about how you or someone you know has benefited from CHD research.

  3. Let us know you took action: advocacy@achaheart.org

Congenital Heart Advocacy Day 2014
sponsorship opportunities are available!
Click here to review and share the sponsorship package.

Thank you to the hundreds of congenital heart patients, families and medical professionals from around the country who continue to make their voices heard on behalf of congenital heart disease, the congenital heart disease researchers and clinicians who provide input to guide our efforts, and the many advocacy experts who shine the light on our path. For more information about the advocacy efforts at the Adult Congenital Heart Association, please contact advocacy@achaheart.org.   

Thank you to our sponsors: