A central component of ACHA’s mission is advocating on behalf of the unmet needs of adults with congenital heart defects.
Dedicated patients, caregivers and medical professionals from around the country converge in our nation’s capital to advocate on behalf of congenital heart defect survivors. For information on past Lobby Day events, click here.
Congenital Heart Futures Act & Policy Agenda
The first federally-funded national initiative addressing the lifelong needs of congenital heart patients became law in March of 2010. Provisions of the Congenital Heart Futures act call for increased research and improved surveillance. We are now working to ensure adequate funding of this new legislation. Learn more about the Act and related advocacy efforts on our Policy Agenda page.