Advocate

A central component of ACHA’s mission is advocating on behalf of the unmet needs of adults with congenital heart defects.

Lobby Day

Dedicated patients, caregivers and medical professionals from around the country converge in our nation’s capital to advocate on behalf of congenital heart defect survivors. For information on past Lobby Day events, click here.

Congenital Heart Futures Act & Policy Agenda

The first federally-funded national initiative addressing the lifelong needs of congenital heart patients became law in March of 2010. Provisions of the Congenital Heart Futures act call for increased research and improved surveillance. We are now working to ensure adequate funding of this new legislation. Learn more about the Act and related advocacy efforts on our Policy Agenda page.

ACHA's Vision 2020 Initiative

ACHA Vision 2020 is an initiative to accelerate the development of adult congenital heart care in the United States. It will bring together national leaders in congenital heart disease to address major existing barriers to providing adequate care for the adult congenital population in the United States. The vision is to establish ACHD as a field that delivers quality lifelong care for adults in the USA. In so doing, we will prevent premature death and disability and prolong health and well-being for congenital heart patients. The Initiative kicked off at the Adult Congenital Heart Association’s first Vision 2020 Forum in Boston on April 26, 2009. For more information, click here.