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By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

These stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

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By CaptainCardio on 3/1/2013 2:17 PM
I am a 48 year old female born with tetralogy of Fallot. The doctors told my parents my life expectancy was 12 years old. My parents would not take that as fact so they were able to connect with a local agency for my cardiac care. I had "experimental" surgery performed at Shands Hospital in Florida in 1969 resulting in placement of a Waterston shunt. The surgery was a success and I have had a "normal" life of a child with a heart condition

Jon

By CaptainCardio on 2/6/2013 4:15 PM
I was born in 1971 with Pulmonary Atresia, a small ASD, and a small right ventricle. I had my first open heart surgery the day after I was born. During that surgery they made a hole between the right ventricle and the pulmonary arteries. My second surgery was just before I turned 4. They enlarged the original hole and put a stitch in my ASD to close that up.
By CaptainCardio on 1/29/2013 8:58 AM
I was born as blue as the clouds in November of 1984. I was born with tricuspid atresia. I had two shunts before I was 6 months. I got a Fontan at the Mayo clinic when I was 4. As a result of that surgery my SA node was damaged so a pacemaker was put in when I was 5.

Dan

By CaptainCardio on 1/18/2013 4:01 PM
In 1969 I was born with a hum-dinger of a condition: Tetralogy of Fallot along with a deviated septum AND transposition of the greater vessels. I had a Blalock shunt in 1971 and a Potts shunt in 1974. In 1986 I had open heart and a Fontan procedure.

Jim

By CaptainCardio on 1/14/2013 4:46 PM
I was born in 1950 in Phoenix, Arizona with tetralogy of Fallot. Had a Blalock/Taussig shunt in 1953 at the University of California Hospital, Oakland. Grew up in Virginia Beach and Norfolk and was quite cyanotic in my grade school years. Had difficulty playing active games with kids and was very winded climbing stairs. I would walk a block, sit down for five minutes then walk another block.
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