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By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

These stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

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By CaptainCardio on 1/29/2013 8:58 AM
I was born as blue as the clouds in November of 1984. I was born with tricuspid atresia. I had two shunts before I was 6 months. I got a Fontan at the Mayo clinic when I was 4. As a result of that surgery my SA node was damaged so a pacemaker was put in when I was 5.
By CaptainCardio on 1/22/2013 1:41 PM
My story begins 22 years ago in March, 1990 in Augusta, GA where I was born to two loving and supportive parents. Soon after I was born (hours maybe) my parents were given the news that I had a serious heart condition known as Hypoplastic Left-Heart Syndrome (HLHS). They had never heard of it before and were told that it was very serious and that if I did not get a transplant or surgery, I would probably die. Because of their strong faith, my parents trusted that the Lord would allow me to live. I was put on the transplant list and was on it for only a few days before they were told they’d have to make the decision to go through with what was known back then as a very risky series of operations.

Dan

By CaptainCardio on 1/18/2013 4:01 PM
In 1969 I was born with a hum-dinger of a condition: Tetralogy of Fallot along with a deviated septum AND transposition of the greater vessels. I had a Blalock shunt in 1971 and a Potts shunt in 1974. In 1986 I had open heart and a Fontan procedure.
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