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By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

These stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

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By CaptainCardio on 2/7/2013 4:08 PM
Hi my name is Kimberly and I was born in August 1980 in Hollywood Florida. I was born with Transposition of the Great Arteries. At the age of 4 months I had to get a cardiac cath done and during the test I ended up having a stroke. It led me to have learning disabilities.
By CaptainCardio on 1/18/2013 4:10 PM
In April 1989, I was born with hypoplastic left heart syndrome, transposition of the great vessel, septal defect and coarctation of the aorta. I had my first heart surgery at five days old at Children’s Healthcare of Atlanta at Egleston. I was only given a fifty/fifty chance of survival. This was the first of a two staged surgery. I would have to have another one around two years old. I came home after ten days but had to be fed through a tube placed in my nose.

Dan

By CaptainCardio on 1/18/2013 4:01 PM
In 1969 I was born with a hum-dinger of a condition: Tetralogy of Fallot along with a deviated septum AND transposition of the greater vessels. I had a Blalock shunt in 1971 and a Potts shunt in 1974. In 1986 I had open heart and a Fontan procedure.
By CaptainCardio on 1/16/2013 11:03 AM
I was born in May of 1988 in Pittsburgh, PA. At birth I was a "blue baby" who lacked oxygen and doctors recognized this as a cardiac concern. I was immediately transported to Children's Hospital of Pittsburgh and underwent open heart surgery at 6 days of age.
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