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By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

These stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

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By CaptainCardio on 1/11/2013 4:38 PM
I was born in 1964 with Double Outlet Right Ventricle (with HLHS), Mitral Valve Atresia, Pulmonic Stenosis, and Total Anomalous Venous Return. One of the rarest conditions, and at the ripe old age of five months, I went in for a Blalock-Taussig shunt procedure. The chances of survival were minimal, and the doctor’s gave my parents a year at most. They told my mother and father to take me home and enjoy the time they had with me.
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