By CaptainCardio on
2/6/2013 4:15 PM
I was born in 1971 with Pulmonary Atresia, a small ASD, and a small right ventricle. I had my first open heart surgery the day after I was born. During that surgery they made a hole between the right ventricle and the pulmonary arteries. My second surgery was just before I turned 4. They enlarged the original hole and put a stitch in my ASD to close that up.
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By CaptainCardio on
1/29/2013 8:58 AM
I was born as blue as the clouds in November of 1984. I was born with tricuspid atresia. I had two shunts before I was 6 months. I got a Fontan at the Mayo clinic when I was 4. As a result of that surgery my SA node was damaged so a pacemaker was put in when I was 5.
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By CaptainCardio on
1/28/2013 11:55 AM
I am a 35 year old single adult woman with CHD. On my second day of life a nurse heard a murmur and my story began. By 3 weeks old I was in congestive heart failure. I can't even imagine what that was like for my parents. I have Shone's syndrome plus other anomalies. I have a coarctation of the aorta, subvalvar aortic stenosis, parachute mitral valve, left superior vena cava, and all types of arrhythmias.
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By CaptainCardio on
1/18/2013 4:10 PM
In April 1989, I was born with hypoplastic left heart syndrome, transposition of the great vessel, septal defect and coarctation of the aorta. I had my first heart surgery at five days old at Children’s Healthcare of Atlanta at Egleston. I was only given a fifty/fifty chance of survival. This was the first of a two staged surgery. I would have to have another one around two years old. I came home after ten days but had to be fed through a tube placed in my nose.
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By CaptainCardio on
1/15/2013 4:24 PM
I was born in South Dakota in 1961 with tetralogy of Fallot. My first heart procedure, a BT Shunt, was at a ripe age of 18 months at the Variety Club Heart Hospital in Minneapolis. After that surgery by Dr. Varco, I got along as best I could until 1969 when we returned to Minneapolis to have the ToF repaired.
I remember as a young boy trying to be involved in baseball with my friends and squatting in the outfield because I had figured out that seemed to help with shortness of breath. The ToF repair went very well and in short order I was running, and playing much like a "normal" kid. I would see a cardiologist occasionally while I was growing up, but for the most part I had no heart related concerns.
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By CaptainCardio on
1/11/2013 4:34 PM
In 1965 I was born with congenitally corrected transposition of the great arteries; Dextrocardia (heart on the right side); associated ventricular septal defects and atrial septal defects, subpulmonic stenosis. As a bonus all my vital organs are opposite, but function normally. I’m posting this so Craig knows that there are more of us “oldies” out there with CC-TGV.
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By CaptainCardio on
1/9/2013 8:57 AM
I am a 52 year old man with congenitally-corrected transposition of the great vessels. I did not know I had this condition until I was 31 years old. I played both football and baseball in college and had always been very active. My condition was discovered by accident when I underwent a routine EKG. It was determined that I had 3rd degree heart block and a pacemaker was implanted.
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