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By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

These stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

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By CaptainCardio on 4/17/2013 9:50 AM
Hello, I am a 43 year old who was born with interrupted aortic arch type A and a VSD. I have had heart surgery 4 times, two in childhood to repair the IAA and one to repair the VSD, and then again recently.

Jim

By CaptainCardio on 1/14/2013 4:46 PM
I was born in 1950 in Phoenix, Arizona with tetralogy of Fallot. Had a Blalock/Taussig shunt in 1953 at the University of California Hospital, Oakland. Grew up in Virginia Beach and Norfolk and was quite cyanotic in my grade school years. Had difficulty playing active games with kids and was very winded climbing stairs. I would walk a block, sit down for five minutes then walk another block.
By CaptainCardio on 1/11/2013 4:34 PM
In 1965 I was born with congenitally corrected transposition of the great arteries; Dextrocardia (heart on the right side); associated ventricular septal defects and atrial septal defects, subpulmonic stenosis. As a bonus all my vital organs are opposite, but function normally. I’m posting this so Craig knows that there are more of us “oldies” out there with CC-TGV.
By CaptainCardio on 1/9/2013 8:57 AM
I am a 52 year old man with congenitally-corrected transposition of the great vessels. I did not know I had this condition until I was 31 years old. I played both football and baseball in college and had always been very active. My condition was discovered by accident when I underwent a routine EKG. It was determined that I had 3rd degree heart block and a pacemaker was implanted.
By CaptainCardio on 12/5/2012 12:36 PM

I was born in the city of Uberlandia, state of Minas Gerais, Brazil on March 26, 1980. I was born with 5 congenital heart defects: my right ventricle is atrophic, I do not have the tricuspid valve, I have pulmonary stenosis, inter-atrial septal defect, inter-ventricular septal defect, and the mitral valve was over working. In other words, my right ventricle did not work properly at all. The doctors considered me a blue baby.

My first 5 months of life was very hard. I had all kind of sickness possible, colds, flu, and almost every day my pulmonary valve would close and I was in crisis with short of breath. My mom would try every possible way to help me but all in vain. My mom, at that time did not know the extension of my health problems.

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