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By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

These stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

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By CaptainCardio on 1/29/2013 8:58 AM
I was born as blue as the clouds in November of 1984. I was born with tricuspid atresia. I had two shunts before I was 6 months. I got a Fontan at the Mayo clinic when I was 4. As a result of that surgery my SA node was damaged so a pacemaker was put in when I was 5.
By CaptainCardio on 12/5/2012 12:36 PM

I was born in the city of Uberlandia, state of Minas Gerais, Brazil on March 26, 1980. I was born with 5 congenital heart defects: my right ventricle is atrophic, I do not have the tricuspid valve, I have pulmonary stenosis, inter-atrial septal defect, inter-ventricular septal defect, and the mitral valve was over working. In other words, my right ventricle did not work properly at all. The doctors considered me a blue baby.

My first 5 months of life was very hard. I had all kind of sickness possible, colds, flu, and almost every day my pulmonary valve would close and I was in crisis with short of breath. My mom would try every possible way to help me but all in vain. My mom, at that time did not know the extension of my health problems.

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