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By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

These stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

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By CaptainCardio on 2/12/2013 9:56 AM
I was born with coarctation of the aorta and patent ductus (PDA) in 1959. I only know the beginning story from my mom, who is a very persistent nurse. She says that she always knew there was something wrong with me but doctors would not listen until I was very sick. Luckily they finally found someone who did help them and then I had surgery.
By CaptainCardio on 12/3/2012 1:21 PM

To give you a little history about me: Until 8th grade I thought I was a totally normal kid, played sports etc. but I needed a physical for an allstar football team I was selected for, and we discovered that I was born with PDA (Patent Ductus Arteriosus) - this is a little valve that closes when you take your first breath as a newborn. My PDA never closed and mixed blue and red blood in my heart.

I also had a Bicuspid Aortic Valve (2 leaflets instead of 3), which started leaking and in turn enlarged my Left Ventricle. This combination was diagnosed and I was sent to CHOP in 1989ish?

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