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By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

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Yvonne

Aug 16

Posted by: ACHA
8/16/2013 2:03 PM  RssIcon

My name is Yvonne and I was born in Michigan in 1968 with Transposition of the Arteries. I was diagnosed with my CHD immediately, I was a Blue Baby. Because of my weight I couldn't be operated on at birth, so my Cardiologist did a Balloon Catheterization (very experimental at the time) which is now known as Angioplasty. When I was 2, I had my first open heart operation to correct the defect. Everything was going well with that surgery until I was 4 when I had to have another open heart operation because I was turning blue again. After my second open heart, I did very well and lead a relatively normal life (with some restrictions). Then I turned 21. My heart started racing just from doing normal things (like taking out the garbage). It was then decided at that time that I needed my first pacemaker. I am now on my fourth pacemaker. I've been doing well with medication and the pacemaker, but in April at my last Doctor visit I was told I was in the beginning stages of congestive heart failure. I'm now on a low sodium diet along with exercise and new medication. I'm very interested in talking to other people like me who are doing well with this diagnosis. Since I have learned that I am in CHF I've tried to do some research and have found that there is very little information for patients with a CHD and CHF. We in our 40's, 50's and 60's really need to stick together and learn from each other.

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