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By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

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Kathleen

Apr 17

Posted by: ACHA
4/17/2013 9:50 AM  RssIcon

Hello, I am a 43 year old who was born with interrupted aortic arch type A and a VSD. I have had heart surgery 4 times, two in childhood to repair the IAA and one to repair the VSD, and then again recently.

Last October, I was feeling unusual fatigue when I exercised. I explained it to my cardiologist during my yearly visit. She ordered multiple tests (echo, halter monitor, CBC), and they all came back normal. She was not satisfied (thank goodness), and then ordered a cardiac MRI. It was then discovered that I had a large aneurysm at the site of my repair on my aortic arch.

This was an unexpected development, and I then had to have a thoracotomy and a graft to replace the portion of my aortic arch. I have been researching this ever since, and I think this defect (and the complication) is very rare. My concern is that there are people that have had this repair and don't know that they need to consider the possibility of this developing. Thankfully, the surgeon that performed the procedure is a pediatric cardiac surgeon. I am recovering well following surgery, and hope that this is the last one I will have to have!

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