By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

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Express Yourself



Apr 10

Posted by: ACHA
4/10/2013 9:38 AM  RssIcon

Hello! My name is Angela. I am 42 and was born with Congenitally Corrected Transposition of the Great Vessel as well as a septal defect. I had my first heart surgery at the age of 12. Back then they had no clue about this heart problem. The corrected area, from my understanding, was filling up with skin and they cut the skin out. I was in the hospital for a month.

In 2006 I suffered a stroke. Fortunately I only had a speech issue which did clear up except for some words come out a wee bit funny and I can tell that my left side is a little bit weaker. On March 5 I underwent my second heart surgery. This time I had a severe tricuspid valve leak and now I have an artificial heart valve. I was only in the hospital for 4 1/2 days.

It is amazing after so much research what they can do to allow all of us to live as normal of a life as possible. Even though this problem exists, I was blessed with two beautiful boys.

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