By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

These stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

Express Yourself



Mar 21

Posted by: ACHA
3/21/2013 4:40 PM  RssIcon

I am a 37 year old healthy female who was recently diagnosed with ASD. Very scary considering my father just passed 6 months ago after getting his mitral valve replaced. My cardiologist just referred me to a surgeon and I'm waiting for treatment options. Since I'm new to all of this, I'm nervous and in the process of gathering information.

My story goes like this: I experienced chest pains at age 18 and was diagnosed with anxiety. I was ok, until the chest pain resumed at age 30. More tests and this time, I was diagnosed with heartburn. Again, the pain went away but came back again at age 36. But this time, I also had "flutters in my throat" which were diagnosed as PVC and PAC. And pre-syncope events and daily dizziness and fatigue. This is when my cardiologist started ordering tests. A year later, a TEE showed ASD.

It's still early and I need more tests, but as of now I know the hole is the width of a finger tip (so they might not be able to do the cath clamshell operation). And they were unable to find my 4th pulmonary vein - they said this is the hardest to find and might be ok, but they need to look again. Bottom line, it sounds like open heart surgery is in my future and after my dad’s passing I'm very worried and concerned. I pray that after more tests, I will have a more optimistic outlook but until now this is my story. I'll keep everyone posted. The surgeon's next appointment is in 6 weeks so until then, I wait in limbo.

Tags: ASD
Blog List
There are no categories in this blog.
Skip Navigation Links.