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By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

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Jan 29

Posted by: CaptainCardio
1/29/2013 8:58 AM  RssIcon

I was born as blue as the clouds in November of 1984. I was born with tricuspid atresia. I had two shunts before I was 6 months old. I got a Fontan at the Mayo clinic when I was 4. As a result of that surgery my SA node was damaged so a pacemaker was put in when I was 5.

At the age of about 10 I started to have flutters and still do to this day. I have had several ablations, 4 different pacemakers and a revised Fontan with the Maze procedure in Chicago when I was 20. I currently work in Oregon as a 1st grade teacher. I enjoy swimming, running, biking, and reading. I am currently learning how to do Tai Chi and play golf so I have something to entertain myself with when I start to slow down.

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